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Posts Made By:
Sue2001
Forum:
her2group
06-11-2006, 05:10 PM
Replies:
53
Poll:
Age at Diagnosis
Views:
8,824
Posted By
Sue2001
Dx at age 41. Nice poll AA, I've often...
Dx at age 41.
Nice poll AA, I've often wondered if Her-2 women get cancer at a younger age.
Forum:
her2group
06-04-2006, 03:07 PM
Replies:
25
GSK Approves Tykerb - Compassionate Use
Views:
5,347
Posted By
Sue2001
Christine and Joe, The two of you are...
Christine and Joe,
The two of you are amazing! Thanks so much to you both. Sue
Forum:
her2group
05-29-2006, 07:07 AM
Replies:
109
Bad news for Madubois63
Views:
14,289
Posted By
Sue2001
Maryanne, I just read your post and wanted...
Maryanne,
I just read your post and wanted to let you know that you are in my prayers. I will be sending postive, healing thoughts your way. I know a woman who had the same thing happen and she...
Forum:
her2group
05-28-2006, 07:54 PM
Replies:
23
Discrimination in the Workplace?
Views:
2,677
Posted By
Sue2001
I don't have any new information for you but just...
I don't have any new information for you but just wanted to respond. Whenever I hear this type of story it makes me so sad. I am so sorry that your mother has to put up with the poor behavior of...
Forum:
her2group
05-28-2006, 07:40 PM
Replies:
24
Side Effects of Adriamycin/Cytoxin and Taxol/Herceptin
Views:
4,169
Posted By
Sue2001
Hi, I had the same treatment as your mother. I...
Hi, I had the same treatment as your mother. I found the Taxol and Herceptin to be much more tolerable than the AC. My side effects for each:
A/C: Some nausea the first few days
...
Forum:
her2group
05-28-2006, 07:23 PM
Replies:
4
Lymphedema question
Views:
1,084
Posted By
Sue2001
Hi Sandy, I recently got a new Jobst glove...
Hi Sandy,
I recently got a new Jobst glove and sleeve. The glove was longer than usual in the wrist area but the sleeve was the same as always. I know that they do come in short, regular and...
Forum:
her2group
05-21-2006, 04:40 PM
Replies:
2
Great site for young children, teens and newbies
Views:
1,308
Posted By
Sue2001
This is wonderful. What a great site for kids. ...
This is wonderful. What a great site for kids. Thanks, Sue
Forum:
her2group
05-08-2006, 07:33 PM
Replies:
8
Sun Sensitivity
Views:
1,502
Posted By
Sue2001
Monique, I found that I was very sensitive...
Monique,
I found that I was very sensitive to the sun while on Herceptin. I burned very easily, even while wearing sunscreen, and I did get a rash along with the burn a couple of times. I ended...
Forum:
her2group
05-08-2006, 07:19 PM
Replies:
27
early stage breast cancer and herceptin
Views:
3,205
Posted By
Sue2001
Suzan, I was part of the clinical trial...
Suzan,
I was part of the clinical trial giving Herceptin to early stage bc patients so I received Herceptin. In talking with my onc last week, he said that he is currently recommending Herceptin...
Forum:
her2group
05-08-2006, 07:14 PM
Replies:
4
regarding Herceptin side effects
Views:
1,068
Posted By
Sue2001
Irene, I was only on Herceptin for 1 year...
Irene,
I was only on Herceptin for 1 year but I had muscle cramps in my legs and back that started while on Herceptin. I never had spasms prior to that. They decreased somewhat when I stopped...
Forum:
her2group
05-06-2006, 07:48 PM
Replies:
20
kat in the delta
Views:
2,362
Posted By
Sue2001
Hi Kat, I was in a clinical trial in...
Hi Kat,
I was in a clinical trial in 2001-2002 and I received Herceptin for 1 year. Tumor markers were checked every 3 months. I was talking with my oncologist the other day and he said that he...
Forum:
her2group
05-05-2006, 09:59 PM
Replies:
6
Markers of inflammation identify br cancer survivors with FATIGUE
Views:
1,018
Posted By
Sue2001
This is very interesting -- thanks for the post. ...
This is very interesting -- thanks for the post.
It's difficult to explain to others what this fatigue feels like. I've always wondered why it didn't go away after treatment stopped. Sometimes...
Forum:
her2group
04-26-2006, 08:26 PM
Replies:
11
Will Tykerb work for you ???
Views:
1,496
Posted By
Sue2001
Joe, Great news. Please keep us posted.
Joe,
Great news. Please keep us posted.
Forum:
her2group
04-26-2006, 08:13 PM
Replies:
63
Worst News Ever!!!!
Views:
9,383
Posted By
Sue2001
Lyn, I am thinking of you and including you...
Lyn,
I am thinking of you and including you in my prayers each day. Please keep us posted.
Love, Sue
Forum:
her2group
04-24-2006, 04:40 PM
Replies:
198
***What was your date of dx, stage, treatment and current status...???***
Views:
32,008
Posted By
Sue2001
Excellent idea! I found a lump while in the...
Excellent idea!
I found a lump while in the shower. Ultrasound showed 3 tumors.
Dx 1-11-01 at age 40.
Stage 3
ER-, PR-
Her2+++
4/13+ lymph nodes
Mastectomy on one side 2-6-01, had to take...
Forum:
her2group
04-20-2006, 07:35 PM
Replies:
10
Why is my hair growing now?
Views:
1,389
Posted By
Sue2001
Same thing happened to me -- hair started to grow...
Same thing happened to me -- hair started to grow somewhat but eyebrows and eyelashes fell out. The hair on my head grew but it was very thin, unhealthy and stopped when it reached about 1/2 inch in...
Forum:
her2group
04-16-2006, 10:24 PM
Replies:
9
Decadron for just herceptin infusion?
Views:
1,675
Posted By
Sue2001
I had weekly Herceptin and did not take Decadron....
I had weekly Herceptin and did not take Decadron. I was given Benadryl with the first infusion of Herceptin, which was a double dose, but from then on I didn't receive any pre or post infusion meds...
Forum:
her2group
04-14-2006, 07:32 PM
Replies:
5
Possible arm use restriction after mastec?
Views:
1,098
Posted By
Sue2001
Hi Ann, I had a mastectomy and lost most of...
Hi Ann,
I had a mastectomy and lost most of my chest muscles too. I have shoulder problems and lymphedema on that side. I was told by the onc nurse to never get have blood drawn or get blood...
Forum:
her2group
04-13-2006, 07:57 PM
Replies:
13
Does Your Skin Heal Quickly After Radiation?
Views:
1,892
Posted By
Sue2001
Hi, I also have extremely pale skin and ended up...
Hi, I also have extremely pale skin and ended up with some bad burns. I thought for sure I would have scars for the rest of my life but I was amazed at how quickly it healed. Within a week it no...
Forum:
her2group
04-13-2006, 07:36 PM
Replies:
14
Fyi
Views:
1,407
Posted By
Sue2001
Congratulations on the new doctor! He sounds so...
Congratulations on the new doctor! He sounds so much better than the last. A doctor with a positive outlook is so very important. Good luck with the tests and let us know the outcome. Take care,...
Forum:
her2group
04-13-2006, 07:26 PM
Replies:
63
Worst News Ever!!!!
Views:
9,383
Posted By
Sue2001
Dear Lyn, Please know that I am thinking of...
Dear Lyn,
Please know that I am thinking of you, sending you warm healing thoughts, and including you in my prayers. I am fairly new to this site but I have enjoyed reading your posts. Keep us...
Forum:
her2group
04-11-2006, 05:09 PM
Replies:
15
Brain MRI was good :) :)
Views:
1,995
Posted By
Sue2001
Congratulations!!! Excellent news.Sue
Congratulations!!! Excellent news.Sue
Forum:
her2group
04-09-2006, 07:03 PM
Replies:
14
Mastectomy----not Having Reconstruction
Views:
4,345
Posted By
Sue2001
I'm with you
I had a right mastectomy in 2001 and have been happy being lopsided for the past 5 years. My doctor really pushed me to get a reconstruction and was surprised when I decided not to have it done. If...
Forum:
her2group
04-09-2006, 06:49 PM
Replies:
15
the latest adventures of madubois63
Views:
1,835
Posted By
Sue2001
My goodness Maryann, what a way to spend your...
My goodness Maryann, what a way to spend your weekend! I'm so glad everything worked out ok and also that you made it home in time for Desperate Housewives. You have a wonderful outlook on life and...
Forum:
her2group
04-05-2006, 01:05 PM
Replies:
31
anyone comfortable going without prostesis?
Views:
5,750
Posted By
Sue2001
I had a single mastectomy and often go without a...
I had a single mastectomy and often go without a bra or prosthesis. Like Lolly, I have trouble with lymphedema and a bra causes problems after a while. I felt uncomfortable at first but now I don't...
Showing results 1 to 25 of 31
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