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04-12-2006, 04:05 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Fyi
Just thought you might be interested: I gave up on the cardiologist who had never heard of herceptin and didn't want to give me a MUGA and treated me like I was going to die of cancer anyway, so why bother. Anyway I went to a new cardiologist Monday. He seems to think the bypass surgery for my heart has been postponed long enough (2 years) and now that I am NED, it's a good time to go for it. I am having an angiogram tomorrow to see if the heart blockage is any better or worse and then he will give me an opinion about going ahead with the surgery. I am both scared and excited! It would be wonderful to be able to go visit my grand and great grand children who mostly live at altitudes over 5 thousand. Right now I can visit rarely and for very short periods, barely breathing with oxygen 24/7. So say a prayer for me and wish me luck! I'll let you know how the angiogram goes and if we are planning to go further. Hugs, Tricia (PS> The new cardiologist looks like Sonny Bono with a touch of Jeff Foxworthy thrown in. He has a sense of humor--which my stuffy former heart doctor didn't have! He even wears cowboy boots! What an improvement!)
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04-12-2006, 05:25 PM
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#2
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Hi Tricia, It sounds like you found a much better Cardiogist then the one you had.  I have followed your posts and he has put you off long enough. I know I personally would NOT of liked the attitude & message your last cardiogist was giving you.
That is great that you can get the needed tests now. Please keep us updated on how the angiogram comes out. I have a feeling it will be great. I know what its like to be on oxygen 24/7...its not much fun.
I really am thrilled you changed doctors. Wishing you all the best with your new doctor. I for one will be saying a prayer for you. At least this new doctor seems to care. I am glad you found him.
Hang in there.
Chelee
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04-12-2006, 08:11 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Spokane/Warden, WA
Posts: 67
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RE: New doc
... can't be all bad if he wears cowboy boots!
You go, girl! Quality of life is essential to us! You need to be able to visit the grandbabies.... I am rooting for you!
dee
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04-12-2006, 08:21 PM
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#4
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Good luck Tricia! Just want you to know my 76 yr. old dad had quintuple bypass surgery last fall after a heart attack, and he did great. The recuperation went a bit slower than normal as he's somewhat disabled, but he was back in his apartment after 2 weeks and started cardiac re-hab a month later. Now he feels wonderful, and they even stopped his blood pressure meds as his bp is "perfect"!
It's a difficult recovery for the first few days, but you'll be amazed after a few months. You will feel like a new woman!
<3 Lolly
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04-13-2006, 04:38 AM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Tricia
Sounds like a great Dr....you are in my thoughts and prayers that you will get the green light after the angiogram!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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04-13-2006, 08:00 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Tricia-
You have a great uplifting spirit - hope things continue to improve for you,
regards,
shell
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04-13-2006, 10:34 AM
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#7
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Senior Member
Join Date: Sep 2005
Posts: 285
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Tricia,
So glad you changed docs. We DO have to take things into our own hands at times. Please let us know about the heart surgery. I can only imagine how scary it must be. But so many people have it now that it must be a good "treatment."
Lots of love and light,
Lisa
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04-13-2006, 10:36 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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I think there is extra healing power in having a doc that you have confidence in!
Best to you from another Triple Positive,
A.A.
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04-13-2006, 11:55 AM
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#9
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Senior Member
Join Date: Mar 2006
Location: Minnesota
Posts: 32
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Tricia,
I wish you good results with your test and/or surgery. Although I have never replied to any of your messages before, I have read them. I find you to be a very positive person. I am hoping you get to go see your grandchildren!
Ann
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04-13-2006, 01:00 PM
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#10
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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Do some searches on WEB on cardiac disease and omega three, and (even better think about looking at balancing your omega threes and sixes). There is some information on the Mayo site.
I have read some interesting trials on omega three and recovery etc.
There are also some posts on this site.
Do consult as increasing omega three / dha epa can induce blood thinning etc.
RB
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04-13-2006, 02:36 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Good luck Tricia.
MCS (Maria)
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04-13-2006, 04:57 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Tricia;
Amazing the difference in doctors and their attitudes. I am so happy you found a good one! I have seen a few friends go through this operation and they did so very well.....even one who was extremely ill at the time. I know this will work out very well for you and you will be able to live as you wish with your family. I will be praying for you and watching for your posts.
Best regards,
Cathy
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04-13-2006, 07:28 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Tricia
It sounds like you have everything under control. Those doctors haven't seen anything yet - wait until you're at 1000% again. They've only seen 100%.
Have a great holiday
Becky
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04-13-2006, 07:36 PM
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#14
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Senior Member
Join Date: Mar 2006
Location: New Hampshire
Posts: 33
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Congratulations on the new doctor! He sounds so much better than the last. A doctor with a positive outlook is so very important. Good luck with the tests and let us know the outcome. Take care, Sue
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04-13-2006, 09:04 PM
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#15
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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You have such a great attitude! You're in my thoughts and prayers. BB
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