 |
04-19-2008, 03:57 PM
|
#1
|
|
Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
|
My PET scan was iffy!
I hope someone can tell me if this happened to them....i did a PET scan because i felt something on my back. My back was ok, but my opposite nipple lite up on the scan. It said "nipple complex" was showing something. I'm concerned maybe Pagets disease? Or something along that line. I'm going to talk to my onc. about it too. My surgery area said, most likely post op changes. I'm concerned!! Dang, and it's going to be my 5 year this August!!
__________________
Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
|
|
|
|
04-19-2008, 09:50 PM
|
#2
|
|
Senior Member
Join Date: Feb 2006
Posts: 1,014
|
Did you have a masectomy on that side or reconstruction, I did have the same breast as my lumpectomy light up with very low suv on this last scan, in the area of the scar tissue. Oncologist wasn't concerned at all, but I will be watching it closely next scan. I've had a lot of pain and inflamation in this breast, could be the same for you. I'm hoping it's nothing, that 5 year mark is a good one to get to..sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
|
|
|
|
|
04-20-2008, 08:45 AM
|
#3
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Michele,
Do you have any other symptoms? Such as rash, scaly skin, itching on
that area? More than likely it is nothing especailly if no other symptoms are showing. Please let us know the update after your Dr. visit.
Best wishes,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
|
|
|
|
|
04-20-2008, 11:37 AM
|
#4
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Michele, I'll be praying that it's nothing at all and that your 5 year mark will be celebrated with complete relief! Please let us know what you hear! Yeah for that 5 years!!!!!
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
04-20-2008, 04:24 PM
|
#5
|
|
Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
|
My onc. thinks it might be non-specific, meaning hopefully nothing. This is my opposite breast, that's why i'm worried. Sherry, my affected side did light up, with "probable post op changes" I expected that. I'm just worried this is the start of Paget's due to the nipple inflammation.
__________________
Michele Ulmer
Dx.2003 Stage 3b 35 pos nodes
Dx August 2003 Stage 3B with 35/35 nodes IDC age 39
Lumpectomy
A/C x4 Taxol x12
35 radiation tx
1Year Herceptin in trial
HER2 vaccine trial Seattle
3 months Tykerb off label
NED
|
|
|
|
|
04-20-2008, 05:20 PM
|
#6
|
|
Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
|
Michelle,
I am hopeful that this is nothing serious. Whatever it may be, you and your doc will be right on it!
Hugs and Prayers,
Lexi
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 03:27 PM.
|
Linear Mode
