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Old 03-22-2007, 09:00 PM   #1
michele u
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Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
Anyone from Nebraska?

I'm looking to see if there is anyone close to me.
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Michele Ulmer

dx: August 2003 stage 3b 35 pos nodes ER/PR neg Her+
4 AC 12 weekly taxol
one year Herceptin in trial
35 rad tx
vaccine trial Seattle
NED
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Old 03-22-2007, 09:03 PM   #2
MGordon
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Location: Colorado
Posts: 131
Boulder Colorado close enough?

It always seems to be close enough when CornHusker Nation buys out OUR stadium at CU for the annual football game! Parking lot just chock full of tractors and combines. LOL!

Anyway - I am always close enough to drive up! Need a visit?

Love and Light
Mel
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Old 03-22-2007, 09:06 PM   #3
Barbara2
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Join Date: Sep 2005
Location: South Dakota.
Posts: 621
S.d.

I'm from northeast South Dakota...probably not too many hours away from you
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Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 03-23-2007, 04:47 AM   #4
Sheila
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Location: Morris, IL
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Michelle

I am not from Nebraska, but go there alot as I have lots of family in Lincoln....I am the biggest Husker fan in Illinois I'm sure...and always know that when my freezer runs low on Runzas, its time to take a trip to God's Country...aka Nebraska....my Mom was born and raised in North Platte....as a joke, when we cross the state line into Nebraska, my sisters and I used to sing "there is no place like Nebraska." We made a pilgrimage out there every year for "lemon days" in Lincoln. Lincoln is a 7 hour drive for me...without a doubt, I have driven that route about 150 times and could do it with my eyes closed. My family there also owns a cabin is Estes Park....and occasionally we get together for a "girls weekend " at the cabin. By the way, one of my cousins there also has breast cancer, but not Her2+. She is 2 years younger than me.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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