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09-27-2006, 10:09 AM
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#1
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Senior Member
Join Date: Mar 2006
Posts: 87
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Great MRI Results
In May, I had WBR and Temodar for 11 spots. In July, they said some were gone, some were smaller and the rest the same. Then, today, the MRI shows everything gone except 1 tiny scar. YEAH!!
Also, my hair has started to grow back. I have a head full of fuzz. I look like a new recruit, but it's on its way.
It was a tough decision to do the WBR. However, I think the low-dose everywhere except when absolutely essential was the way for me to go. It has to be, I can't change it now. LOL
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09-27-2006, 11:07 AM
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#2
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Congratulations on your MRI results. I am hoping that all of your MRI's are clear. Best wishes.
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09-27-2006, 11:08 AM
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#3
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Super news!
WOW!
Thanks, Susan, the fact that brain mets are scary, yet treatable is coming through loud and clear on this board.
Looks like Temador has done a good job for several here.
Great work, and we really appreciate the update.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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09-27-2006, 11:43 AM
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#4
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Founder - HER2 Support Group
Join Date: Feb 2005
Location: Carlsbad, CA
Posts: 361
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Beautiful Brain
Susan
When your brain is all clear. the radiologist likes the phrase "Beautiful brain" for a clear brain.
I'm overjoyed that all is well !!
Could you let me know what were your daily doses and how many days you received treatment? We need this kind of info, especially since you are doing so well.! I would appreciate knowing this, as i could be helpful for others in the future.
Thank you and Congratulations!
Warm Hugs,
Christine
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09-27-2006, 02:03 PM
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#5
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Senior Member
Join Date: Mar 2006
Posts: 87
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Do you want to know the daily doses of radiation or Temodar? I'll need to check for exact numbers. I had 24 total doses - Temodar daily with the radiation. I had a 2 step radiation treatment - whole brain first and then just the problem areas the second half.Beautiful brain - I like that!
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09-27-2006, 04:46 PM
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#6
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Awesome news, I am so happy for you. It is always inspiring to hear when treatments work out so well...sherryg683
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09-27-2006, 04:49 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Susan,
That's great news! I too have the "new recruit" look going on. Mine has actually gotten a little past the fuzz stage. Hope that you continue to have a "beautiful brain."
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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09-27-2006, 05:30 PM
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#8
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Senior Member
Join Date: Jul 2006
Posts: 869
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Terrific news! May God Bless. Ceesun
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09-27-2006, 08:49 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Susan;
That is so wonderful!! I am constantly amazed at how many with brain mets are being successfully treated. It gives us all such hope. Thank you for sharing. Keep well.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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09-27-2006, 10:22 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: British Columbia, Canada
Posts: 198
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That is great news!!! Thanks for sharing it with us.
Tammy
__________________
Dx'd Dec'01 while 6mos preg. with #4. child (30yrsold)Mastectomy/AC chemo/radiation/ Recur:Mar'04 liver mets: 3 taxol/herceptin /liver resection/3 taxol/herceptin. Cured?
Recur: May'05 spine & Hip. New onc
treatment in Mexico Feb'06-Mar-06
back to Mexico June/July '06
Currently on herceptin/Zometa/Femara-recently added navelbine
Switched to arimidex Nov'06
ovaries removed June '07
ca15-3 in May'06 was 102
ca15-3 summer of '07 holding steady at 23!
ca15-3 slowly rising Dec & Jan 36, 38, 41 and Feb was 36
Feb '08 Liver, lung & Brain scan NED... bones are stable with even a couple spots gone. as compared with '06 scans
May '08 ca 15-3 is 55. Treatment is zometa, vinorelbine, herceptin and aromasin.
No signifcant changes.
Feb'09 Started Xeloda with herceptin..no more hormonals
Feb'09-June'09 tumor markers coming down again from 155 to 84
May'09 blood clots in lungs vena cava filter put in..Heparin shots daily for now.
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09-28-2006, 03:01 AM
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#11
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Senior Member
Join Date: Mar 2006
Location: Iceland
Posts: 31
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Hi Susan,
Great news and uplifting for me who is going through same. I also got good scans last time. This is so exciting for us.
Thank you and wish you well
Jóhanna
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09-28-2006, 09:13 AM
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#12
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Wow, great news. Thanks for sharing!
Carolyns
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10-10-2006, 01:56 PM
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#13
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Senior Member
Join Date: Mar 2006
Posts: 87
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Christine - Dosage
7 days wbr @ 180 cgy for a total of 1,260. 17 days specialized @ 180 for 3,060.
So, the affected areas got 4,320 while the unaffected areas got only 1,260.
Hope that helps.
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