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07-01-2006, 08:01 AM
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#1
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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We don't have control over things
My daughter was married last Saturday, so months of decorations and planning are now behind me...it was a beautiful day and a beautiful wedding...but my daughter came down with a stomach virus 20 minutes into the reception, was vomiting non stop and I ended up taking her to the ER...wedding attire and all....(we were the best dressed at the ER I must admit). After 2 IV's and IV Reglan, they got the vomiting under control. Although we missed the whole reception, She was able to fly to Mexico the next day for her honeymoon. THEN...my 7 month pregnant daughter in law got it, and she ended up in the hospital....meanwhile I have had my 2 grandchildren all week (thank God we didn't get the virus) and I now know why women 54 are not in their childbearing years!!!! I have had a wonderful time with them, the zoo, swimming, fishing, parks etc.... I am exhausted, but I wouldn't trade this time for anything ...I have not even thought about CANCER this week. I have learned to limit the kids to 1 pop a day, and 50 questions each!!!! It doesn't get any better than this. They leave tonight...I may sleep for a week!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-01-2006, 08:49 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Life happens!
Wow, sheila, what a story! So glad to hear that with all the ups and downs, everyone (including you!) survived! How wonderful that you were able to get so caught up in LIFE that you forgot your own daily battle to stay in the game. Now THAT's got to be healing in its own right!
Enjoy the rest and the wonderful family fun hangover!
Love chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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07-01-2006, 09:02 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Wow!! Your daughter will have a story to tell her kids one day! Glad she was able to go on her trip, and probably had a much needed rest. She must have been exhausted as well. She looks beautiful in her dress. One would never know what was about to happen.
Wedding stories abound!! Last year I flew to Florida for a wedding. At 2:30 a.m the parents go a call from her frantic daughter. Her husband couldn't get her out of her dress and she needed a special tool to unbutton all those buttons in the back of the gown. Needless to say, they had to go over to the hotel, bring the tool and assist.
Two months before my own daughter's wedding I developed my first recurrence with a 3cm brain met, and cancer through out. My daughter looked beautiful, but I as mother of the bride was full of decadron and you know how that looks. She still wanted me to escort her with my husband. The most important thing is that I made it to the wedding and am still here today.
Best wishes to your family, and to your daughter and her new husband!!!
Barbara H.
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07-01-2006, 09:42 AM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 66
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Sheila and Barbara, your stories brought tears to my eyes - for the experiences we are having and for the opportunity to share these experiences with one another in this Support Group. Life does throw curve balls to everyone. (Lovely bride, by the way).
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07-01-2006, 10:09 AM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 476
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Sheila,
Your wedding story is like an oasis in the BC desert, a funny (with a good ending) break for all of us. Wonderful outcome for all of you to remember.
Congratulation, if a little belated.
Ann
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07-01-2006, 11:22 AM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Sheila and Barbara,
Thank you for sharing your stories - as I read both I am so impressed with the beauty of life that you radiate. Your children are so blessed to have such strong admirable "WOMEN"!
Jean
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