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04-21-2006, 06:55 PM
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#1
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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News from Al ...
Hi - I posted this first in response to Rhonda's query thread, but decided to give the post its own topic so it would not be missed by anyone wondering about Linda.
Steph
Hello All -
I have been in touch with Al today and he asked me to answer your concerns.
He has spent over a week at the hospital with Linda and is away from his computer for all intents and purposes. He sleeps in her room and you know how hard it is to sleep well when the staff comes in constantly for one reason or another. (I can say after just having had that experience for only 2 nights.)
Linda is being given what will keep her comfortable, and she knows Al and the family.
Al has been in touch with researchers at Dana Farber regarding Tykerb. Problem is that now Linda cannot swallow and this drug is in pill form.
Al will be back with any important news. In the meantime keep up the prayers for Linda's comfort and healing.
Last edited by StephN; 04-22-2006 at 10:04 AM..
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04-21-2006, 07:54 PM
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#2
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Senior Member
Join Date: Sep 2005
Posts: 285
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Thank you so much, Steph.
Love and light,
Lisa
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04-21-2006, 07:55 PM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 285
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Steph,
Do we know exactly what happened with Linda for her to be in this condition?
Lisa
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04-21-2006, 08:24 PM
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#4
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Senior Member
Join Date: Oct 2005
Posts: 823
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Prayers still continue for Linda and Al.
Vicki
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04-21-2006, 10:23 PM
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#5
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Lisa -
I can't answer your question about Linda with any detail - I only know that she has progression of her brain mets.
Al said that her liver counts had been good since she got back on the Xeloda.
Wish I had more info, but it is sketchy.
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04-21-2006, 10:45 PM
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#6
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Thank you Steph. I'm keeping them in my thoughts and prayers. Words are inadequate to express my feelings.
<3 Lolly
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04-22-2006, 03:15 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Thank you Steph...
and prayers will continue.
Rhonda
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04-22-2006, 08:11 AM
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#8
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Thanks Steph, for keeping us updated. I know we can always depend on you to help and I am sure Al appreciates it as well. Again thanks. hugs, Sandy
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04-22-2006, 09:38 AM
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#9
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Thanks Steph
This is great of you to do this for all of us. If one person can check and keep us posted it certainly is a great help to Al with everything he is going through now.
I will keep checking on any other messages with further news.
My prayers for Linda/Al and their family. I am sure they know but if you are in contact with them please pass on from all of us on this site that they are in our prayers/
Thanks
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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04-22-2006, 12:54 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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continued prayers
Thank you Steph, for keeping us informed. I'm sure that Al and Linda can feel our prayers.
Sassy
________
condominiums for sale in Pattaya
Last edited by sassy; 08-22-2011 at 08:45 AM..
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04-22-2006, 01:27 PM
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#11
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Senior Member
Join Date: Dec 2005
Posts: 274
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Prayers for Linda, Al and family
Hi Steph,
Thank you for keeping us posted. My thoughts and prayers are with Linda, Al and their family. May God be with them.
Sincerely,
Liz J.
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04-23-2006, 10:23 AM
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#12
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Thanks Steph,
Please let our prayers be heard. Just wish there was more we could do.
Love, Kim
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04-23-2006, 12:30 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Thanks for keeping us updated, Steph!
My thoughts are with Linda, Al and her family.
Barbara H.
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04-23-2006, 12:32 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Al and Linda are in our thoughts and prayers.
Thanks for keeping us in the loop Steph...
Shell
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