 |
08-04-2006, 10:15 PM
|
#1
|
|
Senior Member
Join Date: Apr 2006
Posts: 56
|
Prayers for mom
Hi all, My mom has to go get a Muga scan on Monday the 7th, she is on herceptin. She is really scared that her numbers will be too low to continue on the Herceptin. If you could remember her in your prayers, we would really appreciate it. Thank you and God Bless !
With Love Donna
|
|
|
|
08-04-2006, 11:10 PM
|
#2
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Hi Donna, I will certainly add your mom to my prayers. I have my ECHO coming up also to see if I can continue on herceptin. So I know how you and your mom feel. Tell your Mom to hang in there.
You & your Mom will be in my thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
08-04-2006, 11:14 PM
|
#3
|
|
Senior Member
Join Date: Apr 2006
Posts: 56
|
Chelee, you are so sweet. You will be in our prayes as well. God Bless !
|
|
|
|
|
08-05-2006, 04:48 AM
|
#4
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Donna
Praying that your Mom will get good results...but remember, if she would have to go off for a short period of time, Herceptin stays in the system for a period of time after the last treatment so she is still getting it in a sense....most people who need a Herceptin Holiday do go back on it within a few months....if the results look low she can also get an echo for comparison....just a thought, sometimes the Mugas are off.
Love to your Mom and Lots of Prayers
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
08-05-2006, 05:51 AM
|
#5
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Hi Donna!
I'll keep your mom in my prayers that her #s are just perfect for continuing!
God Bless,
Mary Anne
|
|
|
|
|
08-05-2006, 08:44 AM
|
#6
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Donna, I hope your mom's MUGA score is acceptable, but as Sheila says, follow up with an Echocardiogram if necessary for comparasion. Also, something I've observed during my years on Herceptin, if I have my MUGA or Echo within a week after my Herceptin, the numbers are lower than if I wait until just BEFORE my next scheduled Herceptin. Don't know if it's coincidence or not, but I try to have my test as far out from the last Herceptin as possible 
<3 Lolly |
|
|
|
|
08-05-2006, 09:47 AM
|
#7
|
|
Deceased
Join Date: Mar 2006
Location: Virginia
Posts: 113
|
Prayers for mom
Donna,
I will be saying lots of prayers for your Mom. Try not to worry too much and remember like others have posted already that your Mom can request an echocardiogram which may give an overall better picture of what is truly going on and that even if she does have to take a break from the Herceptin that it stays in the system for quite a long time and that she should be able to go back on it after a short break. I had a friend from the VA Cancer institute who had to take a short break from the Herceptin and she is now back on it and doing wonderfully, she is now NED.
Take care Hon and stay strong, be sure to let us know how your Mom is doing.
Lots of Hugs, love & prayers,
Nicola
|
|
|
|
|
08-05-2006, 11:01 AM
|
#8
|
|
Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
|
Dear Donna and Chelee,
Hope Donna's mother's and Chelee's tests are good and she/you can continue with Herceptin but others have given you helpful advice. Also I find the echocardigram much less "invasive" than the Muga.
Good luck to both of you and to anyone else facing these worrisome tests.
sarah
|
|
|
|
|
08-08-2006, 10:24 PM
|
#9
|
|
Senior Member
Join Date: Apr 2006
Posts: 56
|
Hi , MY moms muga was normal so she can continue on the herceptin Thanks for all the prayers and good thoughts. Chelee, you are in my prayers, hope you get the same result. God Bless !
|
|
|
|
|
08-09-2006, 12:55 AM
|
#10
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Donna, I am so happy to hear all went well and your Mom CAN continue on herceptin. I am sure you both feel better now that you have the results. Its always a relief. I can't wait to get my ECHO out of the way which is soon.
Thanks for the prayers for me too Donna.
Now your Mom is set for at least another three months before they do another ECHO...at least that is usually the time frame. So you guys can relax for now. Your mom has to feel better now that she has that out of the way...one less thing to worry about. YEAH.
You and your Mom take care.
Sending you both warm healing thoughts and prayers.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 04:38 PM.
|
Linear Mode
