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11-11-2008, 11:44 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Michael, I join with all Lily's other sisters and brothers here at Her2support in wrapping you and your family in love and prayers right now. Lily was very special to me, she was always so encouraging and cheering me (all of us, really) on. From the start, I was awed by the "monsterness" of her fight to beat this disease. I will never forget her.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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11-11-2008, 12:50 PM
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#2
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Senior Member
Join Date: Aug 2007
Location: Minnesota
Posts: 128
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I join the others in wishing comfort for you and your family, Michael. I so loved to read Lily's posts ... they were always sweet, comforting, and sometimes funny even when she didn't plan it. Lily, you will always be a shining light in our hearts!
AbbyDawg
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11-11-2008, 01:26 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Oh Michael....My heart is broken. It's been a rough year at her2 support and we've lost many angels to this disease. I am so so so sorry to read of Lily's passing. I feel so sad for you and your family.
My prayers and love I send to you.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-11-2008, 02:32 PM
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#4
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Simply Amazing
One thing that Lily told her bilangual doctor is that he needed to speak English. She said that she knew this disease only in English and she needed him to talk that 'cancer language'. We must all find some kind of comfort knowing how knowledgeable this Sweetheart was and that this was all left in God's hands. He rescued her from the evils of this horrible disease. Rest in peace Dear Lily Flower. I shall forever love you deeply.>>Believe51
And we are left to do our own healing without her. May God guide us through together. I love you all.
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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11-11-2008, 09:08 PM
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#5
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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In Memory of Lily
They are not dead,
Who leave us this great heritage of remembering joy.
They still live in our hearts,
In the happiness we knew, in the dreams we shared.
They still breathe,
In the lingering fragrance,windblown, from their favourite flowers.
They still smile in the moonlight’s silver,
And laugh in the sunlight’s sparking gold.
They still speak in the echoes of the words we’ve heard them say again and again.
They still move,
In the rhythm of waving grasses, in the dance of the tossing branches.
They are not dead;
Their memory is warm in our hearts, comfort in our sorrow.
They are not apart from us, but part of us,
For love is eternal,
And those we love shall be with us throughout all eternity.
Dear Michael please know how loved Lily was by all,
I will keep you and your family in my prayers, I am so
very sorry.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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11-11-2008, 09:48 PM
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#6
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Michael,
I am heartbroken to hear this sad news of your dear sweet Lily's passing. She was such a fighter, and always had such encouraging words for others.
I am so so sorry.
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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11-11-2008, 04:53 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Michael,
I am so very sorry. Sending hugs and healing prayers.
Karen
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11-11-2008, 05:09 PM
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#8
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Senior Member
Join Date: Oct 2005
Location: Saratoga Springs New York
Posts: 136
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Michael, I am very sorry for your loss. We will all miss Lily very much. Sally
__________________
Dx March 2004 HER2+ er/pr+ 8/16 + lymphnodes mets to the liver Stage IV / 6 cycles of TCH and 33 rads . NED Continued Herceptin 3 years w/ Femara. Tumor markers start to rise in Jan of 2007 and swiched to Tamoxifen. August of 2007 found more mets to liver and lymphnodes outside of liver. Went on Tykerb/Xeleoda--spots on liver gone found large mass between intestines. March 2008 started TCH. Stopped Carboplatin due to allergy. Still on Taxotere and Herceptin. Nov 2008 mass is gone. 3 new spot on liver and one on spine. Radiation on spine. tykerb/gemzar for liver mets. PET in April 09 showed shrinkage still a little activity, continue tykerb/gemzar until Aug 09. PET showed new spot on my spine more on my liver and a bunch of enlarged lymphnodes in upper chest. Start Adriamycin Sep 09. more radiation on spine . April 2010- Still on Adriamycin 3wks on 1 wk off and zometa every 28 days. PET -May 2010 showed progression. Starting Herceptin/Navelbine on June '10
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11-11-2008, 05:56 PM
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#9
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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So very sorry, this is so very sad. She tried so hard
and was a wonderful person. My prayers are with
you.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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11-11-2008, 10:18 PM
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#10
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Micheal,
My heart is breaking. I find comfort in knowing Lily, our dear Lily, is free from this horrible disease. She has been an inspriation to all on this site and she will be missed. Many prayers are with you.
Love,
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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11-11-2008, 10:37 PM
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#11
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Guest
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Dear Michael,
I too loved Ms Lily ..I am so very sorry,
Marcia
For Max and Hannah ~
"I am here, I am deep in your heart. I am in all the joys we lived together, all the sorrow too. I am in the way you walk and talk and smile. I am in the things I taught you that you don't even remember learning. I am in the sunshine of your day, the rain and storm clouds too. I am in your talent and your treasures, deep inside. I am in the look in your eyes when you wonder and behold the day. I am in your tears that search for me and can not see for the rain within your eyes. I am in your longing to find me once more close to you. Here I am, wherever you may be. There I am wherever you go. Carry me within you as once I carried you. Deep inside where no one, nothing can ever take me from you. Be at peace my beloved children. Mom is here." author unknown
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11-12-2008, 07:45 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Dear Michael,
I am so sorry to hear about Lily. She was so much a part of this group and I enjoyed receiving her e-mails when she was on the Herceptin DM1 trial. It is so unfair for your beautiful family to lose her at such a you age. My heart goes out to you.
Barbara H.
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11-12-2008, 07:58 AM
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#13
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Senior Member
Join Date: Nov 2006
Location: South Carolina
Posts: 183
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Michael,
You were so lucky to have her as a part of your daily life. She touched so many through her post her at the Her2 support group.
My heart is so sadden by this news. Know that she is safe in the Lord's arms and that the Lord is still with you and your family.
__________________
Anita
er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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11-12-2008, 03:16 PM
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#14
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Our sincerest sympathies to Lily's family.
Christine and Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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