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Old 07-30-2007, 12:03 PM   #21
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 3,000
Wink I got chills Woman!!

Wow Brenda, I just got the chills. What a wonderful way for him to give you all some closure. I think he was telling you just that...that you are all on the right track.

Waiting For A Miracle..and commanding one soon!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 07-30-2007, 12:17 PM   #22
StillHere
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Join Date: Mar 2007
Location: Greendale, WI just outside Milwaukee
Posts: 211
Smile

Loved all the stories, and yes I am more open to everything since dx. Here is mine. My CA27-29 markers have been rising slightly since December (28-37-41-46). My oncol asked if I wanted a PET scan to check if there was any new activity. I said yes. I was so sure that something was going to show up because my lower back and hips ache to the point of waking me up in the middle of the night. Well I had PET scan last Wed. I put my mothers ring on Fri morning because I did not want to hear the results alone. It is an opal ring that my husband I gave her for babysitting the kids when the were small (They are now 27 & 29). I wore it the first year after her death whenever I missed her (especially holidays). I seldom ware it now, but really felt a strong need to put it on last Fri. The oncol office did not call until 4:30 while I was at work. I rubbed the ring and got ready for the worst. To my supprise, nothing except possible inflamation at previous surgical site showed up. It may have just been too soon for the PET scan to show anything, but I am thrilled just the same. I did have to spray Windex on my finger to get the ring off the next day. (Windex, not soap or lotion works great - tip from jewler). I guess this is also a sign that I should start losing some weight.
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04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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