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07-11-2007, 08:15 PM
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#1
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Member
Join Date: Jun 2007
Location: Birmingham, Alabama
Posts: 17
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Update on Please advise, time is running out
Thank you to all who took time to answer my post. I so appreciate your ideas and prayers concerning Pat. The Doctors have given her about a month to live.They tried to put a tube in her small bowel to help her eat but tumors were growing there. She is too sick to travel and too ill for any trials. To be honest I think she believes that her quality of life is not worth the pain and suffering that she is going through. I have heard her say this a few times lately. It is easy for me to say that we will go anywhere and she will take any drug but the truth is that I am not the one dealing with the physical pain.
At this time the onc has started doxirubicin and herceptin and we will pray for a miracle . Thank you all for allowing me to share my feelings on this wonderful site. You all have a special place in my heart.
Sincerely,
Donna in Birmingham, Alabama
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07-11-2007, 09:04 PM
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#2
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Don't know anything to say to you except that you will both be in my prayers. I have my fingers crossed for you as well.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-11-2007, 09:09 PM
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#3
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Senior Member
Join Date: Jan 2007
Posts: 138
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Donna,
I am praying, too and I do believe in miracles.
Hugs,
karen
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07-11-2007, 09:28 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Donna, it is not too late for Pat yet. The treatment may work and give her a turnaround.
In Jan 2003 I was given 2 months to live. My liver was shutting down, it was covered in tumors, I was jaundiced, my skin was yellow, even the whites of my eyes were yellow. I was weak, and losing weight rapidly....20 pounds in 2 months.
My onc started me on Herceptin, Navelbine and Xeloda, and said if it did not work, there was not likely time to try anything else. My church annointed me, I was looking pretty close to passing on.
The treatment worked, and within a year I was back snow skiing 30 days a year, water-skiing, rock climbing and traveling.
I'm still hanging in there and currently showing no evidence of disease. Please keep us posted on how Pat does with her treatment. And remember, there's always hope!
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07-11-2007, 10:12 PM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Donna, my heart just breaks reading your post. However, Esther is my new inspiration... I never knew about your miracle, Esther. Wow. No one can guarantee you a miracle, but why not try? (a quote from my nutritional doctor)
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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07-12-2007, 12:57 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Donna,
My thoughts and prayers are with you and Pat. As Esther has experienced a miracle, why not your friend.
hugs and love
sarah
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07-12-2007, 06:53 AM
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#7
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Donna!
Thank you so much for the update on Pat! This board will rarely allow room for anything but a miracle in it's thoughts! I am grateful for that!
I'll be praying and believing for Pat's miracle with you! My heart breaks for you both and the pain that Pat is in. God bless you. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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07-12-2007, 07:32 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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There are no words to make your journey any easier. My prayers are with you and your partner. I am a strong believer in miracles too and know that sometimes they come in painful packages. You have found new friends here!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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07-12-2007, 08:57 AM
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#9
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Sending prayers for healing your way and like someone else said "Esther is my inspiration" I, too, did not know that about you Esther and that just goes to show who is ultimately in charge here. God wasn't finished with you yet and here you are spreading the good news. Awesome!
May God's Peace surround you today,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-12-2007, 01:57 PM
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#10
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Donna
Please do not give up heart. Look to these girls for some inspiration. BELIEVE. Esther is a mighty fine example of beating the odds that someone else place on her lap. There are good statistics and Pat could be the next. Think as positive as you can at this very hard time in both of your lives.
My husband and I will pray for you both to have the peace you deserve. Stay strong. Lots of prayers and love going out to you.
Waiting For A Miracle...and expecting one soon (how's that for positive?)....>Believe51
PS Believe in Miracles, I have seen too many not to!!!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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