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02-16-2007, 10:04 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Two Years
Feb 16 marks my two year anniversary for surgery, and two years NED.
I celebrated by completing my application to work in the Reach to Recovery program thru the American Cancer Society. So many--including all of you here--have been a tremendous help to me, and I hope I can return my thanks by helping others in some way.
Although this is a life's journey, I feel that I am on the right path and am thankful to be where I am.
________
TeenageDreams
Last edited by sassy; 08-22-2011 at 09:06 AM..
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02-16-2007, 10:27 PM
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#2
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Congrats on reaching this milestone and I wish you continued good health. Your work with Reach for Recovery sounds rewarding and the perfect way to give back.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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02-16-2007, 11:06 PM
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#3
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Senior Member
Join Date: Mar 2006
Posts: 78
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Congratulations on your two-year accomplishment. I just celebrated my 3-year the beginning of Feb and finished 1 year of Herceptin a month ago. Like you, I'm wanting to give back and also contacted American Cancer's Reach for Recovery program. I've gone through the orientation and phone consultation so far. Next month I'm scheduled for a one-on-one phone appt. It's a great blessing to have treatment behind and a good outlook for the future.
__________________
G. Ann
DX 2/04, mastectomy, 2.5 cm tumor, grade 3
Her 2 positive, 60%, 3+/strong, ER/PR-
Stage 2, 0/18 nodes
TX 4 AC (no taxanes, no radiation)
Hysterectomy 10/04
Began Herceptin 1/06, finished 1/07
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02-16-2007, 11:53 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Sassy, Big Congratulations on being two years out & NED. Awesome! I think thats great that you are going to work with Road to Recovery. I know they set me up with a bc buddy and it was very helpful when I was going through chemo. There is nothing like giving back when we can. Way to go Sassy.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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02-17-2007, 03:54 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Sister Rhonda...
CONGRATULATIONS!!!! I'm SO sorry I didn't congratulate you until now (I've thought of your date several times earlier in the week), but my mom fell on Valentines day and broke her artificial knee and I've been at the hospital with her. Doesn't it feel WONDERFUL?! There WILL be many more and live each and every one with great fullness. Take care and God bless. Big huggs to you.
The "Other" Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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02-17-2007, 05:27 AM
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#6
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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What wonderful news. Heres to a lifetime of NED!!!!!!!!!!!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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02-17-2007, 05:30 AM
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#7
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sassy, Congratulations on your 2 year anniversary. Also congratulations to G.Ann on your 3 year anniversary. It's always uplifting to hear good news.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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02-17-2007, 06:02 AM
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#8
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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Good way t celebrate..
Happy NED Sassy - you are perfect for being in Reach to Recovery. You have been a good communicator all along, with both cancer patients and Dr.'s. Good luck on your new adventure....
__________________
Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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02-17-2007, 08:01 AM
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#9
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Senior Member
Join Date: Sep 2006
Location: Originally from Boston, Ma now reside in Deltona, FL
Posts: 30
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Congrats and continued health !! I just finished year of herceptin, fingers crossed, and I became a reach volunteer 5 months ago and have counseled 4 women, two of them under 40, and it has brought so much meaning and fulfillment to my life, more than I can even describe....I am into support groups, but a lot of women need the one-on -one thing, and nobody but a breast cancer survivor can offer the true understanding to a newly diagnosed woman...God bless !!!
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02-17-2007, 08:06 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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GAnn and all,
Congrats on your 3 years! Its great to be looking forward with optimism!
Here's to continued good health and hope for us all!
________
KinkyFox4u live
Last edited by sassy; 08-22-2011 at 09:06 AM..
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02-17-2007, 09:02 AM
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#11
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Sassy,
Happy 3rd Anniversary. How nice to share in your joy.
Also, what a beautiful gift you give in being part of a
very special and much needed program.
God Bless YOU!
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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02-17-2007, 10:19 AM
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#12
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Sassy and G. Ann
Congrats to both of you on your anniversaries...these are right up there next to birthdays for me...I have just signed up to be a reach to recovery volunteer too...I begin the training in a couple weeks....I also want to give back for all I have received. Again, celebrate and enjoy your anniversaries with many more to come!!!!!!!!!!!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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02-17-2007, 11:29 AM
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#13
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Dear Sassy and G. Ann,
You've both reached a huge milestone in this journey, CONGRATULATIONS! Many many more to you and all of us 
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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02-17-2007, 01:57 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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paying it forward
Another option is working with hospice, because just going through such in-depth treatment of any kind and facing the possibility of terminal illness has already educated so many here about it.
AlaskaAngel
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