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Search took 0.03 seconds; generated 103 minute(s) ago. Search: Posts Made By: Shell
Forum: her2group 07-30-2007, 12:06 PM
Replies: 6
Views: 2,005
Posted By Shell
I also never thought to mention that I drink...

I also never thought to mention that I drink green tea at work - oh well!

Regards,
Forum: her2group 07-30-2007, 12:01 PM
Replies: 27
Views: 5,132
Posted By Shell
Nicola- I was so sorry to read of your...

Nicola-

I was so sorry to read of your post, as I was experiencing the same symptoms - WBR was the only option for my as i had too many for gamma knife or stereotactic. I was put on the...
Forum: Herceptin / Tykerb 07-23-2007, 06:34 PM
Replies: 10
Views: 3,428
Posted By Shell
I'm sorry the gemzar is hard -- I took it w/...

I'm sorry the gemzar is hard -- I took it w/ carbo and felt just ok, but as it turns out I was progressing on it, so i attribute that to the reason i didn't feel better - not many side effects though...
Forum: Herceptin / Tykerb 07-20-2007, 09:43 AM
Replies: 20
Views: 5,127
Posted By Shell
Brenda- way to go!! x and then x/t really...

Brenda-

way to go!! x and then x/t really was great for me too. I'm glad your numbers are so good...keep it up!!

Kind regards,
Forum: Herceptin / Tykerb 07-20-2007, 09:40 AM
Replies: 12
Views: 4,416
Posted By Shell
My doctor was very excited when I got the rash,...

My doctor was very excited when I got the rash, also on my buttocks, etc. I didn't have the heard to tell him that when my husband got it, it was probably due to our hottub not being changed after...
Forum: her2group 07-20-2007, 09:35 AM
Replies: 3
Views: 1,769
Posted By Shell
Michele- I stopped the tykerb due to the...

Michele-

I stopped the tykerb due to the diarhhea - never thought to examine for your issue, but it was probably so...I'm so glad I stopped it, but know for me that I had progressed while on it...
Forum: her2group 07-20-2007, 09:28 AM
Replies: 19
Views: 2,136
Posted By Shell
Joy- four hours is what I was told - I had...

Joy-

four hours is what I was told - I had a 2 hour drive, so my treat at completion was the starbucks in the hospital. I'll be thinking of you...

Kind regards
Forum: her2group 07-17-2007, 06:17 AM
Replies: 26
Views: 4,666
Posted By Shell
Maria (MCS)- The test has nothing to do...

Maria (MCS)-

The test has nothing to do with ER/PR status as far as I know. It is used if you are her2/neu+++ to monitor the levels in your system. Perhaps your onc hasn't heard of it yet, and...
Forum: her2group 07-15-2007, 11:11 AM
Replies: 31
Views: 7,074
Posted By Shell
Theresa- I know the abraxane is working...

Theresa-

I know the abraxane is working somewhat because I can breathe easier.

Unlike you, I haven't moved on to oxygen, but by SOB was so bad I think we were headed there. I was taking the...
Forum: her2group 07-15-2007, 10:58 AM
Replies: 31
Views: 4,527
Posted By Shell
Sheila- Thanks for the updated photo - my...

Sheila-

Thanks for the updated photo - my hair is thinning too much and I think I'm right behind you with "the new look". And I love the dogs. But that's only because I finally broke down and...
Forum: her2group 07-15-2007, 10:51 AM
Replies: 65
Views: 11,307
Posted By Shell
Kate- I am so sorry to hear of your...

Kate-

I am so sorry to hear of your progression. My mets was first to lungs, and my onc chose xeloda, and I chose the clinial trial if xeloda with tykerb, and that kicked things back quite a bit...
Forum: Herceptin / Tykerb 07-13-2007, 07:22 AM
Replies: 3
Views: 2,136
Posted By Shell
aside from the diarhhea, you may also experience...

aside from the diarhhea, you may also experience the rash mentioned - wasn't painful for itchy for me, but it was present for a short while... good luck w/ things...

Regards,
Forum: her2group 07-13-2007, 07:17 AM
Replies: 7
Views: 1,402
Posted By Shell
Irene- You are my inspiration - am pleased...

Irene-

You are my inspiration - am pleased to hear your news, and hang in there!!

Kind regards,
Forum: her2group 07-13-2007, 07:15 AM
Replies: 3
Views: 1,454
Posted By Shell
Joy- I took 100mg of b6 in the morning with...

Joy-

I took 100mg of b6 in the morning with my xeloda so I wouldn't forget to take it and my teac said that was fine ( I was in a clinical trial so they were pretty strict). Good luck with it......
Forum: her2group 07-13-2007, 07:12 AM
Replies: 31
Views: 7,074
Posted By Shell
Theresa- I have been thinking about you. ...

Theresa-

I have been thinking about you.

I don't know whether my er-//pr- status changed from initial diagnosis to mets, so I can't answer that part. But you and I are so close in what...
Forum: her2group 07-13-2007, 07:06 AM
Replies: 26
Views: 4,666
Posted By Shell
Christine- my onc uses it only to humor me...

Christine-

my onc uses it only to humor me when I ask for it. i've had it about 4 or 5 times. when the xeloda and doxil and everything else started failing me, my numbers skyrocketed - I want...
Forum: her2group 07-13-2007, 07:04 AM
Replies: 12
Views: 2,409
Posted By Shell
Maryanne- I hope insurnance pays for it for...

Maryanne-

I hope insurnance pays for it for you - keep pushing!

But as I didn't have the test done, I was nost intrigued by Becky's answer about the wigs - I never pushed my ins. co. and...
Forum: Herceptin / Tykerb 07-05-2007, 07:16 AM
Replies: 7
Views: 3,065
Posted By Shell
Debbie- I was the same way with the...

Debbie-

I was the same way with the diarhhea and the losing weight. I finally stopped the tykerb, because it didn't seem to work for me, and things are finally starting to get under control...
Forum: Herceptin / Tykerb 07-05-2007, 07:14 AM
Replies: 7
Views: 2,484
Posted By Shell
Brenda- I always got the worst symptoms in...

Brenda-

I always got the worst symptoms in my off week, so what you are sharing is not that surprising - good luck with things!

regards,
Forum: her2group 06-28-2007, 11:53 AM
Replies: 6
Views: 2,037
Posted By Shell
I did not have hair loss on this combo, but I...

I did not have hair loss on this combo, but I have very thick hair. Perhaps it will just continue to thin for you, as you are noting...

Regards,
Forum: her2group 06-28-2007, 11:51 AM
Replies: 17
Views: 2,525
Posted By Shell
Marie- Chrisy has good advice, to try to...

Marie-

Chrisy has good advice, to try to remain calm, and I see you have already scheduled an appoiintment at Dana Farber, which is great. Try to accumulate the info you need to make a decision,...
Forum: Herceptin / Tykerb 06-25-2007, 12:05 PM
Replies: 24
Views: 8,598
Posted By Shell
Jakki- I was in the clinical trial for...

Jakki-

I was in the clinical trial for xeloda/tykerb, and had the H/F syndrome as well as diarhhea. A great website is www.xeloda.com (http://www.xeloda.com), where they have a treatment diary,...
Forum: Herceptin / Tykerb 06-25-2007, 12:00 PM
Replies: 10
Views: 2,468
Posted By Shell
Harald- I'm glad she has started tykerb - I...

Harald-

I'm glad she has started tykerb - I take 5 pills a day before I go to bed, and am still dealing with the diarhhea issues - I take the immod ad but I don't think it helps much.

We just...
Forum: her2group 06-25-2007, 10:33 AM
Replies: 17
Views: 2,789
Posted By Shell
Beckie- I am sorry to hear your news, but...

Beckie-

I am sorry to hear your news, but am pleased that you were proactive about your treatment - I agree with the 2nd opinion suggestion and am always comforted by the knowledge of those on...
Forum: her2group 06-22-2007, 06:54 AM
Replies: 10
Views: 1,929
Posted By Shell
Today is day 4 of 10 for the radiation, so that...

Today is day 4 of 10 for the radiation, so that should be done soon- no side effects so that's nice ... I stopped the tykerb for a day or two because of the diarheea, as I kept losing weight, but I...
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