Tykerb rash

Shell · 07-20-2007, 09:40 AM

My doctor was very excited when I got the rash, also on my buttocks, etc. I didn't have the heard to tell him that when my husband got it, it was probably due to our hottub not being changed after we let jr high girls in it!!

The rash is good...

Kind regards,

Lolly · 07-20-2007, 05:52 PM

Beckie, after a week or so on Tykerb I had "the rash" on my face & neck, right shoulder and upper arm, across my upper back and a few spots on my left upper arm. Maybe a few spots on my stomach, can't remember for sure. It started clearing up by the 5th or 6th week, and was never painful or itchy, just a bit uncomfortable.
I do know some from here didn't have the rash and are having a good response to Tykerb anyway, so don't worry if it doesn't get "worse"!

<3 Lolly

awjkej · 08-06-2007, 11:58 AM

Hi Ladies,

I haven't posted here in awhile, but someone on breastcancer.org told me that there was a good tykerb/xeloda thread here :-).

I am in my first round of tykerb/xeloda. 3300mg xeloda, 1250mg tykerb. 2 weeks on, 1 week off. I am on my week off of xeloda right now.

I have a rash on my forearms and my chest that itches constatly. I also have, on my face, a rash which is centered on my nose and around my mouth. It is annoying, painful, itchy. The rest of the side effects are there but nothing I can't handle. The rash on my face is quite ugly, but I could deal with it if it didn't hurt so much. I am using the Udderly Smooth Udder cream and am also taking benedryl to help with the itching/pain. This seems to be working alittle bit.

I just spoke with my oncologist and he wants me to be off of tykerb for a few days til I see him this Thursday. He said that we would discuss what to do next at that time.

I have a pretty high tolerance for pain, and don't have pity parties as a rule but for some reason this is overwhelming for me ... ugh! Right now I don't know whether to stick it out for awhile, and see if it clears up, or if I need to be looking at different options.

Thanks for listening,

Anne

Esther · 08-06-2007, 12:42 PM

Anne:

My onc gave me a prescription lotion to put on the rash and it helped alot to clear it up and take care of the itching.

Scratching just seems to make it worse. I also used hydrocortizone ointment and it seemed to help the itching.

My rash cleared up after about 6 weeks or so and has not come back.

awjkej · 08-06-2007, 01:03 PM

Hi Esther,

Thanks! Do you know what the prescription lotion is called??? I stay away from the scratching as you said it only irritates it.

Anne

Esther · 08-07-2007, 01:31 AM

Anne:

The prescription my onc gave me was for Clindamycin Phosphate Lotion, Topical suspension USP 1%.

That and hydrocortizone cream I got at Rite-Aid for the itching did the trick.

eric · 08-07-2007, 05:15 AM

In case anyone doesn't already know it, the rash is an EXCELLENT sign that the Tykerb will work well for you. Happy itching!
Eric