HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 12-23-2013, 05:01 PM   #1
IrvineFriend
Senior Member
 
IrvineFriend's Avatar
 
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
Red face Mismatched reconstruction

I'm about a month out from scheduling my PS appointment to switch our my expanders and curious of other's experience. I had a double skin sparing mastectomy and spared my non-cancerous breast nipple. Even before rads my left non-cancerous breast started sagging whereas my right side is totally solid so it feels like my breasts are traveling in opposite directions! I look ridiculous in a bathing suit or w/o a bra. The sagging one really hurts so I'm wearing a sports bra again 24/7. My PS said she will remove a muscle from my back to try to bring back some symmetry.

I'm doing the "meeting the parents" deal over Xmas and hate having to wear sports bras even to sleep -- and meeting the entire family (we're staying with them).

Has anyone looked like this before the last step and had them look OK after expanders were removed? Sorry for the lengthy question. I'm almost done and looking for some hope that this has all been worth it!!!!

-Julie p.s. Merry Xmas!
__________________
Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
IrvineFriend is offline   Reply With Quote
Old 12-29-2013, 06:06 AM   #2
LeahM
Senior Member
 
LeahM's Avatar
 
Join Date: May 2012
Location: Bethlehem PA
Posts: 395
Re: Mismatched reconstruction

Hi Julie,

I hope you had a nice Christmas and meeting the family went well.

My pre-reconstruction self did not look as you are describing yours but I can talk about my post reconstructed self, which, by the way, I don't do often.

My left reconstructed breast (healthy side) looks fine. Nice shape and form, if it had a nipple it might even look real.

My right reconstructed side (stupid cancer side) looks, to me, a bit odd. From my main view (looking down at it) it seems kind of flat on top, not rounded like the left side. When I wear a tight workout shirt and am looking at it while doing ab work I again see the flatness of the top. The very few people I have shown it to (including my PS) who all see it looking straight at it instead of looking down at it say they can't see it. Well, my PS says he can see it but it's minimal and the risks of "fixing" it outweigh the benefits. I don't think a nipple would help this breast. Plus, to me, the right breast sits higher on my chest and I'm afraid the nipples wouldn't be even. So...no nips for me

I had a small amt of abd lipo at the time of my reconstruction to "smooth" out any dimples or ripples. Well, I have ripples. I can feel them but as of yet cannot "see" them. Recovering from the lipo was harder then recovering from the exchange surgery. And post lipo I read that fat removed from one area and replaced in another would eventually reabsorb into your body as if it had never been moved to the new area at all. I don't know if it's true or not as I didn't research it further but I can assure you had I read that first (or youtubed lipo) I would not have allowed them to do the lipo.

It's all hard choices to make, even when the "hard" stuff is over.

Oh....and my boobs look hot hot hot in a Victoria Secret Push Up bra. I wear bras everyday....it's a normal thing to do and I am embracing "normal" these day.

Best
Leah
__________________
39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
www.onmywaytosurvivorhood.blogspot.com
www.thechemobag.com
www.facebook.com/thechemobag
LeahM is offline   Reply With Quote
Old 12-29-2013, 02:32 PM   #3
jaykay
Senior Member
 
Join Date: Oct 2012
Posts: 646
Re: Mismatched reconstruction

Hi Julie,

I also had a double mx but did nipple sparing with tissue expanders. My "good" left breast had a lumpectomy and radiation about 13 years ago and adapted to the expanders fine. The new cancer breast developed capsular contraction - heavy duty scar tissue around the expander and started moving up even before radiation. I wore bras the entire time because I was so uneven (coobie with pads).

Had my exchange surgery a little over 2 months ago. After 2 weeks, the "good" breast kind of shifted. I have a very boney upper chest and according to the ps, this is not an unusual happening. Right breast is doing fine but I am massaging it daily to try to keep the scar tissue to a minimum. The ps did warn me that the effects of radiation are ongoing.

I will have a little bit of lipo for the shifted breast to try to fill in the "dent". I was also told that the fat may be re-absorbed but I'll see what happens. I go without a bra when I can wear layers and am not going anyplace. But I've always worn a bra and still do the majority of the time. Major plus is no underwire :-). The boyfriend says they are looking good, and compared to the expanders, they do.

Hope you had a great holiday meeting the family and a happy and especially healthy New Year!

Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
jaykay is offline   Reply With Quote
Old 12-30-2013, 03:30 PM   #4
IrvineFriend
Senior Member
 
IrvineFriend's Avatar
 
Join Date: Jan 2013
Location: Irvine, CA (Southern CA)
Posts: 414
Re: Mismatched reconstruction

Thanks for getting back to me. And meeting the family went very well and I had a great time. I'll let you know how the exchange goes when it finally happens. Just want to get it all over with and be as done as I can be! I am glad the hard part is over with!!!

Have a Happy & Safe New Year!

-Julie
__________________
Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
IrvineFriend is offline   Reply With Quote
Old 12-30-2013, 03:43 PM   #5
roz123
Senior Member
 
roz123's Avatar
 
Join Date: Mar 2012
Posts: 199
Re: Mismatched reconstruction

Julie
ive had the "muscle" surgery - its called a lat flap
my advice is try the exchange and try to live with so, me imperfections - the lat flap surgery is a tough surgery to recover from and some (like me -lucky!) have on going issues from it
PM me if you would like more info
__________________
diagnosed aug/11
right breast IDC 2.2 cm LVI
neoadjuvant fecx3, tax and her x3
surgery -pCR 0/2 nodes
25 rads
herceptin x18
tamox
prophy bi-msx with TE's oct 15/12
LD flap reconstruction (PM me if you want the details)
zoladex shots monthly until SOFT studies come out
roz123 is offline   Reply With Quote
Old 12-31-2013, 11:27 AM   #6
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
Re: Mismatched reconstruction

Hi Julie,

Nice to hear from you!

I have nothing to say about expanders, but want to say have a great time "meeting the parents".

Love,

Adriana
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
Adriana Mangus is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:28 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2026, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter