 |
|
06-30-2013, 09:26 AM
|
#1
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Dear Sisters of our Beloved Jessica (JML)
Below is a wonderful video (made two years ago) sent to us by Jessica's very kind and generous sister, Janice. Jessica and Janice remind us to Keep the Faith always (which we MUST do). Jessica made the video (in Janice's words) to "inspire everybody to LIVE a life full of hope, humor, family and love".
I plan to do my very best.
I just re-edited (again!) and think the link here as well as the one below will work. Keep in mind that a commercial will run first.
Love,
Karen Z
http://www.myfoxatlanta.com/video?au...clipId=7081382 |
|
|
|
06-30-2013, 09:39 AM
|
#2
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
I can watch this video if I place it in a Word document or when Janice sent it. I think I need help from the tech people on this site as it is not showing here. Trying again another way:
http://www.myfoxatlanta.com/video?au...clipId=7081382
o.k., this will work. you will see a commercial followed by Jessica's video.
Love,
KZ |
|
|
|
|
06-30-2013, 03:06 PM
|
#3
|
|
Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
|
Re: Dear Sisters of our Beloved Jessica (JML)
Wow!
Such a beautiful spirit. No wonder I miss her so much!
Thanks, Karen, and Jessica!
Denise
|
|
|
|
|
06-30-2013, 03:09 PM
|
#4
|
|
Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
|
Re: Dear Sisters of our Beloved Jessica (JML)
I can't view the video - she sure was wonderful though.
|
|
|
|
|
06-30-2013, 03:53 PM
|
#5
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: Dear Sisters of our Beloved Jessica (JML)
The link worked fine for me and thanks for sharing this Karen, I had come to know Jessica here but it was wonderful to see and hear her speaking , what an amazing woman. I'd suggest for anyone not being able to view this to try switching your browser to Chrome which should work.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
06-30-2013, 05:12 PM
|
#6
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
Hi Mandamoo,
Try the link in my SECOND posting (at 12:39). I do not know why that one works but the first did not when I copied/pasted here (at least for me). Both work fine everywhere else (Word document/when Janice sent, etc.) Thanks for your advice Tricia about switching to Chrome.
|
|
|
|
|
06-30-2013, 05:17 PM
|
#7
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
I have now edited things so that the link will work in both my first and second posting (sorry for the duplication). Again, Tricia suggests switching to Chrome if one has any problems. The video is beautiful.
|
|
|
|
|
06-30-2013, 10:42 PM
|
#8
|
|
Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
|
Re: Dear Sisters of our Beloved Jessica (JML)
Jessica is missed so. She was and is Hope as all of you stage 4 women here are to me. I can only imagine just how many people here and in her day to day life she helped including me. I'm in awe of her and everyone here. Everything that goes on in your own lives and you still have time to teach hope here. So many of us that are lucky enough to find this site were searching for hope and thinking at the same time there isn't any. My God I'm so ashamed that I felt I wasn't worthy of the fight or strong enough for this fight. Each and everyone of you show me how wrong I was every time I sign in. I am so blessed. Thank you Jessica. Thank you everyone here.
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
|
|
|
|
|
07-01-2013, 09:18 AM
|
#9
|
|
Senior Member
Join Date: May 2010
Posts: 184
|
Re: Dear Sisters of our Beloved Jessica (JML)
What a beautiful inspiring video. Thank you for posting it and thanks to all of you here that share their knowledge, humor and support. I feel like I am very lucky to have found you all.
Cathy
__________________
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
|
|
|
|
|
07-01-2013, 04:59 PM
|
#10
|
|
Senior Member
Join Date: Mar 2010
Location: Thornhill Ontario
Canada
Posts: 266
|
Re: Dear Sisters of our Beloved Jessica (JML)
Thank you for that Janice. What a spirit and calmness that Jessica had. She faced so many battles but continued on embracing her life and adding to everyone's around her. The look on her dog's face was also one of pure love and devotion to her. Peace to your family.
__________________
August 2008
Lumpectomy left breast
1 tumour 0.9 cm
Her2 negative
lymph nodes negative
venous/lymphatic invasion absent
ER+PR-
Stage I Grade 2
Radiation and Femara
November 2008
Lumpectomy right breast
2 tumours .03 cm and .05 cm and extensive DCIS
.05 tumour Her2+
lymph node negative
venous/lymphatic invasion "indeterminate"
ER+PR low postive
Stage 1 Grade 2
January 2009
bilateral mastectomy
chemotherapy taxotere
Herceptin one year
Femara
|
|
|
|
|
07-02-2013, 10:09 AM
|
#11
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
LoisLane,
Your words are so true ("What a spirit and calmness that Jessica had. She faced so many battles but continued on embracing her life and adding to everyone's around her". Also, so true about the devotion of Jessica's dog. It seems like they were meant to be with each other!
|
|
|
|
|
07-02-2013, 10:40 AM
|
#12
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
To Pray,
You are not alone when you say you felt you were not worthy or strong enough for the fight. Please do not be ashamed. Many of us here have had those same feelings and have been bolstered strongly by Jessica and others..... who did know all along that they had the ability to Keep the Faith and LIVE. We have been blessed to know them and to have known them and we must let their courage not only inspire us but move us to the next level. I now feel that very strongly and can only hope that I am up to the challenge (which goes against my nature as anyone who knows me can tell you). I AM TRYING in Jessica's memory and honor and those of our other incredible sisters. We have lost some wonderful people this year and we must change our lives (if needed) to show them how much they have affected us.
|
|
|
|
|
07-02-2013, 08:24 PM
|
#13
|
|
Senior Member
Join Date: Aug 2010
Location: New York, New York
Posts: 1,580
|
Re: Dear Sisters of our Beloved Jessica (JML)
Please be sure to see this video as well:
http://www.youtube.com/watch?v=qERqUy40d78
She is truly missed.
Karen
__________________
World Trade Center Survivor (56th Floor/North Tower): 14 years and still just like yesterday.
Graves Disease, became Euthyroid via Radioactive Iodine, June 2001.
Thyroid Eye Disease. 2003. Decompression surgery in 2009; eyelid lowering surgery in 2010.
Diagnosed: June 2010, liver mets. ER-/PR+10%; HER2+++.
July 2010: Begin Taxol/Herceptin. Eliminate sugar from diet. No surgery or radiation.
January 2011: NED
April 2011: Progression in liver only. Other previous affected areas eradicated. Stop Taxol/Herceptin after 32 infusions.
May 2011: Brain MRI: clear.
May 2011: Begin Tykerb daily, Xeloda twice per day for one week on, one week off, and Herceptin.
November 2011: Progression in liver. All other tumors remain eradicated.
December 2011: BEGIN TRIAL #09-093 Taxol, MCC-DM1 (T-DM1), Perjeta.
Trial requires scans every six weeks, bloodwork and infusions weekly.
Brain MRI: clear.
January 2012: NED. Liver mets, good riddance!
March 2012: NED. Developed SMA (rare blood clot) in intestinal artery and loss of sight in right eye due to optical nerve neuropathy. Resolved when Taxol removed this month.
Continue Protocol of T-DM1 weekly and Perjeta every 3 weeks.
May 2012: NED.
June 2012: Brain MRI: clear.
June-December 2012: NED.
December 2012: TRIAL CONCLUDED; ENTER TRIAL EXTENSION #09-037. CT, Brain MRI, bone scan: clear. NED.
January-March 2013: NED.
June 2013: Brain MRI: clear. CEA upticking; CT shows new met on liver.
July 3, 2013: DISASTER STRIKES during liver ablation: sloppy surgeon cuts intercostal artery and I bleed out, lose 3.5 liters of blood, have major hemothorax, and collapsed lung requiring emergency resuscitative thoracotomy, lung surgery, rib rearrangement and cutting deep connective tissue, transfusion. Ablation incomplete. This life-saving procedure would end up causing me unforgiving pain with every movement I make, permanently, otherwise known as forever.
July 26, 2013: Try Navelbine/Herceptin. Body too weak after surgery and transfusion. Fever. CEA: Normal.
August 16, 2016: second dose Navelbine/Herceptin; CEA: Normal. Will skip doses. Watching and waiting.
September 2013: NED, Herceptin only. CEA: Normal. Started Arimidex.
October-November 2013: NED. Herceptin and Arimidex. CEA, CA125, 15-3: Normal.
December 2013: Something brewing. PET lights up on little spot on liver; CEA upward trend, just outside normal. PET and triphasic liver scan confirm Little Met. Restart Perjeta with Herceptin, stay on Arimidex. Genomic sequencing completed for future treatments, if necessary.
January 2014: Ablate Little Met on the 6th. Happy New Year.
March 2014: Brain MRI: clear. PET/CT reveal liver mets return; new lung mets. This is not funny.
March 2014: BEGIN TRIAL #10-005 A(11)-Temsirolimus plus Neratinib.
April 2014: Genomic testing indicated they could work, they did not. Very strange drug combo for me, felt weird.
April 2014: Started Navelbine and Herceptin. Needed something tried and true, but had significant progression.
June 2014: Doxil and Herceptin.
July 2014: Progression. Got nothing out of it. Brain: NED.
July 2014: Add integrative medical hematologist-oncologist to my team. Begin supplements. These are tumor-busting, immune system boosters. Add glutathione, lysine and taurine IV infusions every three weeks.
July 2014: Begin Gemzar, Herceptin & Perjeta. Happy.
August 2014: ECHO perfect.
January 2015: Begin weekly Vitamin D Analog infusions. 25 mcg. via port.
February 2015: CT: stable.
April 2015: Gem working, but not 100%. Looking into immunotherapy. Finally, treatments for the 21st century!
April 2015: Penn Medicine. Dendritic cell immunotherapy.
|
|
|
|
|
07-02-2013, 08:38 PM
|
#14
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
Yes, that is also a really nice video. Great to see Jessica doing her teaching and training in the studio.
|
|
|
|
|
07-04-2013, 03:20 AM
|
#15
|
|
Senior Member
Join Date: Dec 2011
Posts: 585
|
Re: Dear Sisters of our Beloved Jessica (JML)
Thank you for sharing the videos. They were both wonderful.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
|
|
|
|
|
07-05-2013, 10:04 AM
|
#16
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
Yes, both are a wonderful tribute and very inspiring to us all.
karen z
|
|
|
|
|
07-06-2013, 05:43 AM
|
#17
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
I am "bumping this up" so that members who may have missed the two wonderful videos on this thread can see some truly inspiring actions and words by Jessica (who is very missed by all).
karen z
|
|
|
|
|
07-06-2013, 08:51 AM
|
#18
|
|
Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
|
Re: Dear Sisters of our Beloved Jessica (JML)
Karen
How would you feel about adding these two beautiful video links to the "Remembering Jessica" thread so we can come back to them easily, whenever we need a spirit boost?
Denise
|
|
|
|
|
07-06-2013, 02:25 PM
|
#19
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
Hi Denise,
I think that is a fine idea. I am pretty sure the second (KDR posted) video, although maybe with another link (?), is on the first two early threads that were posted. But please feel free to post the new one from Jessica's sister Janice to the earlier threads as well. And I think you are so right about giving us a sometimes much needed and much desired "boost".
|
|
|
|
|
07-08-2013, 06:09 AM
|
#20
|
|
Senior Member
Join Date: Apr 2008
Posts: 1,477
|
Re: Dear Sisters of our Beloved Jessica (JML)
Hi to everyone and happy Monday.
I have wondered whether seeing the videos posted about Jessica (and in Jessica's words) may not only given us a "boost" or will give us a "boost" when needed but will effect the way we decide to live our lives. I think they are powerful messages from a powerful woman and, again, wonder how we might chance our day to day living because of them. I know I am working hard to be more optimistic in general.......not of cancer related issues per se.......but to be more optimistic and more open to the future. Has anyone but me been inspired to change something about one's day to day (or future) living?
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 12:02 PM.
|
Linear Mode
