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Old 04-05-2013, 08:04 PM   #1
SusanN
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FINALLY had my 1st Cycle of TCH...
Whew...I'll admit...I was full of anxiety when my port was first accessed...praying all the way!!!!

Monday, April 1st (No Foolin'!!) of all days...had Herceptin...then, day 2, Taxol/Carbo...

I really can't complain so far, however, RIGHT before I started, I "thought" I had a yeast infection, (YUCK), sorry...more than you all want to know ...then, I decided NOT to second guess myself, turns out, I have a UTI!! Sure glad I got on this!!

Ohhh, all of a sudden, I have acne...hmmm...anyone???

I've been pushing the FLUIDS...trying to really stay on it!!!

Lord Willing, with HIS STRENGTH, every 21 days..., then a year of Herceptin!

Thanks ALWAYS for your love and encouragement...know I'm sending up prayers for all of you!!
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Old 04-05-2013, 09:46 PM   #2
KsGal
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Re: FINALLY had my 1st Cycle of TCH...
I think that the acne type reaction is fairly common, although I didn't have a lot of difficulties with that myself. Yes, push push the fluids! I thought TCH was fairly easy to tolerate (okay, easy to tolerate for CHEMO), but remember that the side effects build with each round so try to plan for that a bit. I remember being quite relieved getting that first treatment under my belt. I had built it up so much in my mind and heard so many stories, I had really psyched myself out! It wasn't nearly as scary as I had made it out to be in my mind. Lots of prayers and positive energy headed your way.
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Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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Old 04-06-2013, 12:24 AM   #3
Jackie07
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Re: FINALLY had my 1st Cycle of TCH...
Susan,

The new schedule is interesting, yet makes sense.

The targeted Herceptin is pumped first (Day 1) and then T+C the next day. An extra trip with possibly a huge payout!

I've been having lots of UTI's since my BC diagnosis almost 10 years ago ... I now pop high-strength cranberry pills almost daily and try to remember drinking enough fluid (the tumors in my brain seem to have affected my Stiety Center since I was little - eating/drinking has always been an conscious effort - possibly the reason why I enjoyed sports so much ...

Sending you good vibes.
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Old 04-06-2013, 08:05 AM   #4
LeahM
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Re: FINALLY had my 1st Cycle of TCH...
Susan stay as strong as you can! You can do this...no foolin!
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39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
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