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Old 01-10-2013, 09:04 AM   #1
capburke
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Smile Thank you to the 12 wonderful women who completed my doctoral survey

Just wanted to say thanks to those of you who participated in my doctoral survey. My dissertation is finished and I graduate 1/27/13!!! (And I'm still NED--six months and counting!) I've made a donation to this site as promised and I have included the abstract for my dissertation below if anyone is interested. Email me if you would like to read the whole thing (warning--it's long Again thank you so much!!


Younger Women with Breast Cancer: The Impact of Self-Directed Learning on Quality of Life during Chemotherapy
by
Christina A. Burke
A dissertation submitted to the faculty of Wilmington University in partial fulfillment of the requirements for the degree of Doctor of Business Administration

Abstract
In addition to facing advanced and more aggressive forms of breast cancer than older patients, younger women with breast cancer face a wider range of age-specific challenges, have unique information needs, and often report lower quality of life. Self-directed learning can be a key component in meeting the informational needs of this population. The Health Belief Model provided a framework for this research. Self-directed learning activity levels may help predict health-related action by limiting perceived barriers, providing cues to action, and increasing self-efficacy. The purpose of this cross-sectional study was to determine if a significant relationship existed between disease-related, self-directed learning activities and quality of life in younger women with breast cancer receiving chemotherapy. Specifically, this study sought to examine whether a correlation existed between quality of life, as measured by the FACT-B survey instrument, and self-directed learning activities, as measured by the Self-Directed Learning Activities Assessment survey, an instrument developed and piloted by the researcher specifically for this study. The results of the correlational analysis indicated that no significant relationship existed between quality of life and self-directed learning activities among those surveyed. The lack of relationship may be due in part to the homogenous nature of the sample. The study did find, however, that younger women with breast cancer made significant lifestyle or medical treatment decisions based on information obtained from self-directed learning and those participants who engaged in higher levels of self-directed learning took actions that were more significant. These findings provide support for the Health Belief Model and demonstrate the impact of self-directed learning on health-related action.
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Dx 1/10 with 3A and have had 2 recurrences to the lymph nodes in chest and neck. Just finished radiation (for the second time!) and I am currently on Xeloda. Clear PET 6/12/12!!!! Hoping to join NeuVax trial in October.
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Old 01-10-2013, 09:31 AM   #2
NanaJoni
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Re: Thank you to the 12 wonderful women who completed my doctoral survey

Applauding you!. This was difficult work under difficult circumstances. You should be very proud.
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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Old 01-10-2013, 05:00 PM   #3
tricia keegan
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Re: Thank you to the 12 wonderful women who completed my doctoral survey

Huge congrats!!!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 01-11-2013, 01:41 PM   #4
mamacze
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Re: Thank you to the 12 wonderful women who completed my doctoral survey

Hearty Congratulations on a huge accomplishment! Knowledge is power and you are rockin' the boat!
Keep up the great work!!
Love Kim (from CT)
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2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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Old 01-11-2013, 02:37 PM   #5
Mandamoo
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Re: Thank you to the 12 wonderful women who completed my doctoral survey

Congratulations!
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Old 01-11-2013, 08:06 PM   #6
sassy
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Re: Thank you to the 12 wonderful women who completed my doctoral survey

Congrats and thanks for your support to the site.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 01-11-2013, 08:46 PM   #7
karen z
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Re: Thank you to the 12 wonderful women who completed my doctoral survey

Many congratulations on a huge accomplishment!!!
Celebrate and enjoy!!!
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