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08-05-2011, 12:19 PM
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#1
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Senior Member
Join Date: Jun 2011
Posts: 107
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double vision episode where brain seemed to freak
Hi,
I have been on Navelbine for about 6 weeks---had treatment yesterday and today I had an episode that was totally out of the blue. I couldn't dial the phone to call my husband b/c it was like my brain was "scrolling" and nothing would stay in the picture. I was seeing everything moving and double vision.
Has anyone had anything like this happen to them?
I called my Drs' office right away and got a new nurse and she asked the oncologist (mine is out for the day) and was told to tell me to just watch things and if it happens again they will do a brain MRI.
I'm stage 4, with so far no hint that it is in my brain.
Any ideas?
Thanks.
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08-05-2011, 12:51 PM
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#2
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: double vision episode where brain seemed to freak
Personally, if I had an episode like that I would probably head for the ER. Has it resolved? Did you have any numbness or weakness in your extremities? I think you should be seen by a doctor.
Keep the faith.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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08-05-2011, 01:50 PM
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#3
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: double vision episode where brain seemed to freak
My advice, as someone who had numerous brain mets with no symptoms, DO NOT WAIT - go and get a brain MRI immediately! If they are caught small they are much easier to treat. I too had double vision in December and turns out it was more brain mets. I've had 25 of the suckers so far and fortunately we've been able to manage them with a combination of Gamma Knife targeted radiation and now Intrathecal Herceptin.
I am sure your symptoms are from something else as brain mets are a rare complication. But you'll want the peace of mind ruling them out.
Good luck and keep us posted. You will be in my thoughts and prayers.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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08-05-2011, 03:15 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: double vision episode where brain seemed to freak
I agree to get this checked out - absolutely. But to give you some peace of mind, I had these symptoms on the AC portion of my chemo - very disoriented with numbers. I could not fax or call anyone. I knew the phone number but dialed it wrong and knew I was dialing it wrong. Very strange. Did get brain CT which was clear and an MRI after chemo and rads were complete - also clear. However, you must make sure you are okay. I believe that some chemo does affect the blood-brain barrier and it can cause this effect.
Stay calm but you must also rule out mets as I did.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-05-2011, 09:10 PM
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#5
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Re: double vision episode where brain seemed to freak
Becky, here is an example of why I love this site. You showed up with specific information to share. I had certainly never heard of this intriguing side effect so it is great that you could identify it and offer reassurance.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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08-06-2011, 11:41 AM
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#6
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: double vision episode where brain seemed to freak
I think you should see a doctor immediately. That doctor should authorize an MRI. In addition to checking for breast cancer mets double vision can also indicate a stroke. You should also see an opthamologist as soon as possible. Take good care of yourself.
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08-08-2011, 04:54 PM
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#7
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Senior Member
Join Date: Jun 2011
Posts: 107
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Re: double vision episode where brain seemed to freak
Thanks to all who posted. I have a brain MRI scheduled, and saw an opthamolgist just to rule out anything else.
Opthamalogist said everything looked good.
I have had 3 seperate epsiodes now. Each episode has been different and has lasted a short time and then completely resolved.
I appreciate this board so much. Your feedback and encouragement are a great help when things come up that are upsetting and I don't know where to turn to get help.
Thanks and God bless! I will post when I know more.
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