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05-07-2010, 09:32 AM
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#1
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Senior Member
Join Date: May 2009
Posts: 510
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My butt hurts
So I've been sitting a lot at work for the past week and now my butt is hurting quite a bit. I don't want to be alarmed and immediately think it's a sign of mets, but as we all know, every pain and ache after cancer can put us in high alert.
I'm not in pain every day (wasn't yesterday but am again today after I sat in the car to drive kids to school and now at work) so I'm trying to think that it's just due to the sitting.
But can a pain in the butt literally be an indication of a pain in the butt bone met? Where are the more common places for a bone met to occur? Should I be alarmed? How can I tell whether the pain is in the muscle vs in the bone? I don't feel pain anywhere else but in the buttocks where I sit.
Thank you so much!!! Trying not to stress...
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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05-07-2010, 11:17 AM
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#2
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: My butt hurts
Hi Marcia
I think it is probably herceptin and tamoxifen related rather than a met but I so understand how you are feeling as I do the same each and every day
Hugs Ellie
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05-07-2010, 11:33 AM
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#3
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: My butt hurts
Hi Marcia,
My butt and right leg used to pain a lot and after a lot of stressing and getting an MRI, nothing was found. I was told it is probably sciatica.
In your case too, I think it may be some pinched nerve related to sitting too much or bad posture. But, I totally understand the worry. Wishing you peace of mind and clean results in case you decide to follow up on it.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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05-07-2010, 11:39 AM
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#4
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: My butt hurts
Hoping its nothing, Marcia. Can you palpate the pain (i.e. touch the exact spot where it hurts?) If so, its probably not bone mets. I could never quite determine where my pain was coming from. Whereas with muscle pain, I can always find the exact spot. If you can't find it by touch, there are, of course, a million other explanations, like a pinched nerve, neuropathy, etc.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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05-07-2010, 01:22 PM
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#5
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Senior Member
Join Date: May 2009
Posts: 510
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Re: My butt hurts
Thank you, ladies. I'm trying to think positive - the pain started last week after a long day at my desk. Hopefully it's nothing. What worries me is that when I squeeze my buttocks to try to determine the source, I have to press hard to feel it. It feels like the pain is deeper inside rather than something muscular on the surface.
I called my oncologist's nurse today and she told me to watch it and to perhaps check with my primary care doctor next week if the pain continues. I may do that - it may be faster and she may order a scan for me. I haven't had any scans yet since my surgery last August, and this may be the right opportunity to ask for one.
I'll keep you posted.
Enjoy your weekend,
Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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05-07-2010, 01:26 PM
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#6
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Senior Member
Join Date: Aug 2008
Location: San Francisco
Posts: 260
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Re: My butt hurts
Another thought is to have your doctor check your alkaline phosphatase levels. These numbers are usually high if you have bone mets - but not always.
__________________
4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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05-07-2010, 05:28 PM
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#7
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: My butt hurts
I have nothing to offer except a vote for best post headline  |
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05-08-2010, 12:50 PM
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#8
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Senior Member
Join Date: Aug 2009
Location: Owasso, OK
Posts: 185
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Re: My butt hurts
I second Rich's comment! Your subjet line post gave me a laugh, but I completely get how new pains can get us nervous. Here is to hoping its a pulled muscle or sciatic nerve. Have a wonderful Mother's Day.
__________________
Hayley
Oklahoma
3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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05-08-2010, 01:55 PM
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#9
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: My butt hurts
My butt also hurt on the right side last January and
Dr. ordered bone scan which showed no mets but
there is a syndrome called ischial tuberoisty which
I developed after sitting in the car on a long road
trip and they came to the conclusion that was the
problem. Look up ischail tuberosity and see if that
relates to your problem. Good luck. This did go
away with exercise and cream.
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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05-08-2010, 01:55 PM
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#10
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: My butt hurts
Ummm ... I decided to google butt bone ... it's real name is
coccyx. I know you're concerned about this pain butt your post
made me smile "butt bone" .... "butt bone met" ... I have to agree
with Rich ... a prize for the best thread title.
I noticed that you started your post with "I've been sitting a lot".
There's a real good chance that's the problem butt we have to get
everything checked out with our oncs just in case ... butt I don't think
it's anything serious ...
Keep us posted on your butt.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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05-10-2010, 10:38 AM
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#11
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Senior Member
Join Date: May 2009
Posts: 510
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Re: My butt hurts
Thanks, everyone! You are the best! I spent the weekend without any pain, but felt it again as soon as I sat down in my chair at work. Maybe I'm allergic to it now 
Seriously, I'll observe it for another week and if the pain is still there, I'll pursue an appt with my primary care or oncologist.
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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05-10-2010, 03:23 PM
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#12
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
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Re: My butt hurts
Marcia,
I had the same worry when my right neck/shoulder became very painful since my bc was on the right side.
Fortunately it was 'just' cervical vertebrae degeneration - the nerves got exposed because of the degenration and caused pain easily whenever I moved my right neck/shoulder too much.
I then found out it is a side effect of Tamoxifen which I had used for almost 5 years altogether. [Tamoxifen causes 'less' osteoporosis than aromatease inhibitor such as arimidex, so I had not thought about it being the culprit.] You might want to check the side effects of all the medicine/chemo agents you've had so far. In the meanwhile, see if you can find a donut-hole shaped pillow to put on your seat...
ps. My Father-in-law 'cracked' his tailbone just a 'hairline' 3 weeks ago. He was nauseated and throwing up...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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05-13-2010, 10:54 AM
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#13
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Senior Member
Join Date: May 2009
Posts: 510
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Re: My butt hurts
Thank you so much for caring! I was pain free all weekend but felt it again Monday morning and a little on Tuesday, but not anymore. So I'm becoming more confident that it's hopefully just case of a sitting-too-much-at-work allergy
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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