 |
01-30-2010, 11:37 AM
|
#1
|
|
Senior Member
Join Date: Jan 2010
Posts: 170
|
I'm back
Sorry to say that I really am not glad to be posting again. I have been lurking for the past 3 years, but really thought I would not have to seek more guidance, wisdom, and support, but alas my cancer has returned.
Had shortness of breath and a cough. Finally went to the doctor yesterday, as I was too scared to go before. Confirmed that the cancer is in my lymph nodes around my esphogus (sp) and chest wall.
Looking for a new onc. now and reviewing my options.
Life was going so great too. My first grandchild is due in June, my daughter got a great job in D.C. and my youngest is graduating from college in May.
Love living in Denver and just got a promotion.
Boy did yesterday change my life again.
Anyway, thank you again to all of you who continue to keep us informed of chemotherapy options, side effects and life's journey along this road.
|
|
|
|
01-30-2010, 12:40 PM
|
#2
|
|
Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
|
Re: I'm back
Dear Emelie,
I'm sorry you need us again, but glad we are here for you. I have no wisdom on treatments, but I do want you to know that I'm here if you need to vent, talk, cry, swear or throw objects at someone.
Hugs
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
|
|
|
|
|
01-30-2010, 12:50 PM
|
#3
|
|
Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
|
Re: I'm back
Hi, Emelie,
Welcome back, I wasn't here when you were before, so I look forward to getting to know you. I'm glad we have each other as we walk this path.
Alice
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
|
|
|
|
|
01-30-2010, 01:02 PM
|
#4
|
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Re: I'm back
Welcome back. You are always welcome here, but we wish it were under different circumstances.
Good luck with the next step in your health care, whatever that may be. Be sure to let us know how you are doing.
|
|
|
|
|
01-30-2010, 01:53 PM
|
#5
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Re: I'm back
Dear Emelie
I am so sorry about your recurrence but you know we will be here for you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
|
|
01-30-2010, 02:43 PM
|
#6
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Re: I'm back
Emelie, I am so sorry you had to visit us again. But we are here for you. Last Sept. I had a recurrence after a good run of 3 1/2 yrs of being NED. Just as you start trusting your body again...life is good...wham...it just sucks. Unfortunetly so many of us here understand how your feeling. But do know there are alot of good options out there to knock this down just like you did the first time. Keep us updated & we will all be glad to help you in any way we can. Hang in there. Sending you a really big hug!
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
01-30-2010, 03:09 PM
|
#7
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,809
|
Re: I'm back
Emelie,
Sorry that you have found a recurrence. I know the shocking feeling - I had found my recurrence after 4 years of 'clean mammograms'. There's so much mixed emotions...
Several long term members have had similar recurrence like yours - in the lymphnodes. You might already know this - if you type in 'long-time survivors' using the 'Search' button on the top bar, you will find many women who have similar stories like yours.
Most of us put our treatment histories in the 'signature' field. To help others lend you better support, you might want to put your treatment history in your signature field also by going to the User PC field - Signature - ...
I just had a hysterectomy/oophorectomy because of family/personal cancer history. Also learned from my oncologist that my ER status had changed from weakly + (5%) to ER- in the recurrence. But I have continued on for 5-year's worth of Tamoxifen anyway (will end it when I finish this last re-fill.) Breast cancer is such a complex disease, we just have to keep up with it and get a step ahead...
Take care and know that we are all behind you...
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
|
|
01-30-2010, 04:58 PM
|
#8
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Re: I'm back
Hi Emelie, I remember you from the past here and so sorry you 're facing this recurrance. I know the ladies here battling stage iv will give you inspiration and courage.
I'm awaiting mri results myself for suspected bone mets and think I know how you feel.
We're all here for you 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
01-30-2010, 06:42 PM
|
#9
|
|
Senior Member
Join Date: Jul 2006
Posts: 869
|
Re: I'm back
Hello and welcome back, I am sorry that you will have to go into treatment again....I know that feeling of sorrow when a setback happens. One thing I have learned through my own experience is that there are still joys to be found in life even while facing a life threatening illness. I hate that lesson, but for me, I have found that to be the case. In the past few years during my own progression, I have managed to travel, celebrate the birth of my first grandchild who is now three, see my youngest graduate from college, just to name a few of the joys. Yes, there is a flip side too, I have had to make many adjustments in plans and pass up some opportunities. But life can still be pretty good. Sincerely, Ceesun
|
|
|
|
|
01-31-2010, 05:20 PM
|
#10
|
|
Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
|
Re: I'm back
Emelie,
I am so sorry that you have to wage war once again. But, I know that you are up to the fight.
Much has changed in the 3 years that you've been gone. One of the big successes for many facing stage IV is the introduction of TDM-1. Many on the board have had enormous success.
So...take heart my dear...you shall prevail once again.
I too am live in the Denver metro area and if you ever want someone to talk to, please feel free to private message me and we can meet for an ice cream sundae!!
Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 04:21 AM.
|
Linear Mode
