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01-13-2010, 08:02 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Melbourne Victoria
Australia
Posts: 330
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50 th Birthday today 14 Jan 10
Hi everyone
Today I celebrate my 50th birthday. When I was first dx in 2001 I thought I would be doubtful perhaps to make it to 50. Well despite a recurrence in 2005 and a stage iv diagnosis then I have spent another 4.5 years in remission and now hope to live to an advanced old age.
I have seen my daughter through primary school and this year she starts her second year of high school.
Thankyou to all who post on the website as it has been a great support to me over the years.
Tomorrow I have a CT scan after having been off herceptin for 5 months. Wish me luck!
Jackie (down under)
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01-13-2010, 08:13 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: 50 th Birthday today 14 Jan 10
Happy Birthday to you! I will be thinking of you tomorrow too.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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01-13-2010, 08:32 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: 50 th Birthday today 14 Jan 10
Jackie,
Happy 50th...It is wonderful to hear your wonderful news. Best wishes being sent and the best news to be yours.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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01-13-2010, 08:42 PM
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#4
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Senior Member
Join Date: Jul 2006
Posts: 869
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Re: 50 th Birthday today 14 Jan 10
Have a great birthday and wishing you good luck! Ceesun
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01-13-2010, 09:33 PM
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#5
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: 50 th Birthday today 14 Jan 10
A very Happy Birthday to you. Congratulations. I hope you celebrate many, many more birthdays in the future.
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01-13-2010, 09:48 PM
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#6
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: 50 th Birthday today 14 Jan 10
Happy 50th Birthday Jackie - wishing you many more! Eat some chocolate, it's good for you!!
Good luck tomorrow...
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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01-13-2010, 10:03 PM
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#7
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: 50 th Birthday today 14 Jan 10
Hey Jackie -
Thanks for letting us know you great news. I just ate some dark chocolate to celebrate with you!
You took the plunge to toss off your Herceptin blanket, so I will be giving good positive thoughts your way for a clean scan.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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01-13-2010, 10:21 PM
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#8
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Re: 50 th Birthday today 14 Jan 10
Happy Birthday Jackie!!!!!
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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01-14-2010, 03:26 AM
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#9
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: 50 th Birthday today 14 Jan 10
Happy 50th birthday.Good luck for scans we will all be thinking of you.
Ellie
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01-14-2010, 05:02 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: 50 th Birthday today 14 Jan 10
Happy birthday! Make it the best one ever.... until next year.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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01-14-2010, 05:11 AM
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#11
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Senior Member
Join Date: Oct 2008
Posts: 41
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Re: 50 th Birthday today 14 Jan 10
So very happy for you and your daughter. Congratulations, Happy Birthday and many, many more. We are indeed blessed to be here celebrating.
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01-14-2010, 05:29 AM
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#12
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: 50 th Birthday today 14 Jan 10
The very best on your special day! Here's to many more birthdays and celebrations! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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01-14-2010, 09:43 AM
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#13
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: 50 th Birthday today 14 Jan 10
Happy Birthday!! Wishing you 50 more Birthdays full of good health and joy. You fill me with hope.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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01-14-2010, 12:59 PM
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#14
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: 50 th Birthday today 14 Jan 10
Happy birthday Jackie, and many, many more to come.
Amelia
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01-14-2010, 01:44 PM
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#15
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: 50 th Birthday today 14 Jan 10
Happy 50th Jackie.....A blessing.....for sure! I'm so happy things have went so well for you. I will be praying about tomorrow's CT. I know you are stressed about that (ANYONE would be) so I not only pray that the CT scan will be normal but that God's Peace will hold you close from now until you hear those beautiful words - "you are normal!"
Love and hugs,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-14-2010, 02:17 PM
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#16
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: 50 th Birthday today 14 Jan 10
Hi Jackie,
Thanks for posting and a very, very happy and blessed birthday to you!!! Wishing you many more NED's :-)
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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01-14-2010, 03:18 PM
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#17
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: 50 th Birthday today 14 Jan 10
Yay!!! I do enjoy celebrating birthdays!! I wish you a very happy day and many more to come. Saying a prayer for comfort as you wait on your scan.
Hugs,
Lexi
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01-14-2010, 04:21 PM
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#18
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: 50 th Birthday today 14 Jan 10
Hi Jackie, May you have VERY HAPPY 50th BIRTHDAY! Here's to many, many more to come! Congratulations on the 4.5 yrs in remission...may that continue another 50 yrs at least.  I'll be thinking positive thoughts for your CT scan. I hope your out celebrating today...any excuse to have some fun should be taken advantage of. Wooo hooo!
Enjoy!
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-14-2010, 09:12 PM
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#19
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: 50 th Birthday today 14 Jan 10
Happy B-Day- thinking of you.
k
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01-15-2010, 10:43 PM
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#20
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Re: 50 th Birthday today 14 Jan 10
Happy birthday a day late, Jackie! I hope your test results are all you hope for, and may the year ahead be a good one! Hugs, Tricia
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