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Old 11-25-2009, 06:09 PM   #1
Joe
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A Thanksgiving Message To All.

In 2 weeks volunteer members from our support group will be traveling to San Antonio to the Breast Cancert Symposium.

Hopefully we will be returning with good news as thee are already some rumors that something exciting might happen.

Christine and I want to wish everyone a Happy and Peaceful Thanksgiving.

Chris, Joe, Debra, Danielle and Belle
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Old 11-25-2009, 06:25 PM   #2
tricia keegan
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Re: A Thanksgiving Message To All.

Thanks Joe and finger's crossed we get good news from the conference

I'd also like to wish all my oversea's friends a very Happy Thanksgiving. We don't celebrate this holiday here but I'll be thinking of you all stuffing your faces lol.....personally I'm very thankful for my clear scan this week and all the support I received from my friends here on her2
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 11-25-2009, 06:29 PM   #3
chicagoetc
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Re: A Thanksgiving Message To All.

Joe, Christine et al,

Thanks and Happy Thanksgiving back! I look forward to hearing what comes out of the San Antonio conference. Enjoy!

Melanie
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Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
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Lymphedema Rehab 9/10/10 - 11/10/10
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Old 11-25-2009, 06:47 PM   #4
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Re: A Thanksgiving Message To All.

Happy Thanksgiving Joe & Christine! The picture of Belle is just the sweetest!
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

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I think I just might hang around awhile....

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Old 11-25-2009, 07:31 PM   #5
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Re: A Thanksgiving Message To All.

Tricia,
This is for you: Dr. Martin Murphy

Dr. Murphy had graciously accepted our invitation to sit on our board of directors.

Regards
Joe
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Old 11-25-2009, 07:37 PM   #6
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Re: A Thanksgiving Message To All.

Thanks, Joe, and Happy Thanksgiving to you and yours. Good luck with everything.
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Old 11-25-2009, 08:21 PM   #7
Jackie07
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Re: A Thanksgiving Message To All.

Happy Thanksgiving!

I will be recovering from my surgery then. The previous years I was working. Guess I'll aim for next year to go to San Antonio - only 3 1/2 hr. drive from our home.
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NICU 4.4 LB
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Old 11-25-2009, 08:55 PM   #8
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Wink Re: A Thanksgiving Message To All.

Happy Thanksgiving from Hawaii.
I am looking forward to good news from San Antonio too !!
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
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14 Year Survivor
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Old 11-25-2009, 09:07 PM   #9
suzan w
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Re: A Thanksgiving Message To All.

Happy Thanksgiving, Joe and Christine!! XO Suzan
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age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 11-25-2009, 10:17 PM   #10
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Re: A Thanksgiving Message To All.

Best wishes for you all and a Happy Thanksgiving Celebration!!!

With Love,

Paty
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Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
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Old 11-26-2009, 06:11 AM   #11
Midwest Alice
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Re: A Thanksgiving Message To All.

Happy Thanksgiving everyone!!!

You all are always in my prayers as I am so thankfull to be a part of this wonderful family here.
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04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
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Old 11-26-2009, 06:37 AM   #12
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Re: A Thanksgiving Message To All.

Happy Thanksgiving everyone!
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 11-26-2009, 07:37 AM   #13
tricia keegan
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Re: A Thanksgiving Message To All.

Thanks for letting me know Joe

I'm not familier with Dr Murphy here in Southern Ireland but I read up on his work when you mentioned his name in the past.
I'm delighted he has accepted and will be on the board and am sure with such a distinguished background it'll be very beneficial having his input.
Thanks again and Happy Thanksgiving to you , Christine and your family today and thanks for all you do.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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