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Who do I call, what do I do?!!!
I can't explain everything...too much to it! But the case manager I've been dealing with since my onc ignores me is stalling and delaying all my pre-op test that Dr. Femino needs before my surgery next wk. She's intentionally making things very difficult to me! My onc canceled my appt for today and doesn't want to see me until Dec. 1st. She also told the case manger that Tykerb is NOT an option for me because it will affect the healing of my hip? (I was told it would be ok?) She refuses to let me have my TM'ers ran as promised today, & it looks like my herceptin has been canceled on the 16th!! As you all know this is a very critical time for me between my recurrence and needing my femur fixed. I don't have time for all this crap.
I've been thru this before and I called Attorneys, and all kinds of places for legal help. No one could help me. And believe me...I called so many places no one would believe it!
This case managers job obviously is to BLOCK me from doing anything. I see that NOW. She gave Dr. Femino a bad time too from what I heard. My onc should be calling me and setting up my herceptin infusion...plus talking to me about possible adding Tykerb, Faslodex, and AI since my recurrence but she won't give me the time of day. She always tells me stress will bring my cancer back...yet she is ALWAYS causing me stress on purpose because she wants it to kill me! The case manager keep telling me to deal only with her and I see its done nothing but cost me more problems.
So I'm at my wits end here...please help me. Does ANYONE know WHICH button I can push to make them do what their suppose too. There HAS to be LAWS...someone that can step in NOW...not in a few days or weeks. This is BEYOND cruel. They have delayed me for SO LONG now & their doing it again. This PRE-OP tests that Dr. Femino needs requires NO special authorization. And my primary doc is gone till Thrusday or he would help me. I need my surgery and God forbid if I don't do chemo soon I'm NOT going to be here. I know my body and cancer is on the move.
Who can I call that will REALLY help me...this HAS to be illegal but it seems these people are untouchable!! And unfortunetly I don't, & can't make changes right now...my NEW insurance takes affect January 1st! Then I can go any where I want...but that doesn't help me now. I literally have chest pains right now...I'm shaking and have been crying. They seriously want me dead and gone. I have made calls all morning to Dr. Femino's since he knows the problems I am having with my onc! I've called my HMO...they said I can file a grievence...that doesn't help me right now! I need this done now...surgery is suppose to be Nov. 18th. I also called my husbands Benefits office...waiting for a call back. He's looking for a lawyer right now. I am frantic if you can't tell. I've fought so hard and now they do this to me.
I can't change onc at this place...they refuse...so that's out of the question too. They have me boxed in so I get no treatment and can't do anything. Who do I call that can REALLY help. I'm beyond desperate.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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