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Old 11-03-2009, 10:32 AM   #1
margiermc
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Join Date: Aug 2009
Posts: 94
Her connection live nurse -good resource 24/7 hotline

Hi, I'm sure many of you already know this, but I just got off the phone with Herconnection.com live nurse.
They are available 24/7 (nurse) - there to answer your questions and concerns about being on herceptin. Night sweats was my question - and it's from the menopause -
but - any further questions or concerns it's always for your dr to answer, or if you have one of those middle of the night concerns you can speak to a live nurse - that has knowledge of Herceptin - 1866-449-4372
margie
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Old 11-03-2009, 02:09 PM   #2
Cal-Gal
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Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
Re: Her connection live nurse -good resource 24/7 hotline

Thanks Margie-I think I ran across this several months ago--but a reminder is good--just in case--right now I have more issues with my port-a-cath than the Herceptin--which is going pretty flawlessly after 4 months--8 more months to go!!!!
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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