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Old 11-02-2009, 06:16 AM   #1
cynthia1962
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Short term disability

I am from the state of Tennessee does anyone know whether or not since I have to take herception for 1 year or longer and had 4rounds of chemo whether this qualifies me for short term disability. My onc states he does not want me to work since I am having a lot of side effects and has wrote a letter to the disability examiner stating this but does this really qualify me. I got denied the first time. I did it on my own now I have an attorney fighting for me.
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Age 47, TN
Infiltrating Ductal Carcinoma of Breast, Grade 2 Stage IIA, Estrogen Receptor Positive, Gross Description 0.5cm up to 1.2cm in length with an average diameter of 0.1cm
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Old 11-02-2009, 09:53 AM   #2
hutchibk
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Re: Short term disability

I don't know about private disability, but you won't be considered for social security disability as a breast cancer patient unless/until you are diagnosed with distant metastatic progression. On SS disability, there is no such thing as short-term or temporary disability...

In the last year or two, the internal federal rules for medical disability approvals for cancer patients have become increasingly more stringent and will become even moreso in future years. One of my dear friends works as a medical disability case investigator. She is horrified at how the feds have shifted approval rules in favor of psychological approvals (seems that anything can be chalked up to "bi-polar") and to the increasing detriment of chronic dire diagnosis medical patients.

This is my editorial opinion of what I have learned from talking to my friend, but it seems that chronic medical patients are too much a drain on the system and use too much of the system (sound familiar?) and are too expensive to keep alive, so the theory is to withhold as much assistance from them as possible so they will "go away" sooner.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 11-02-2009 at 10:13 AM..
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Old 11-02-2009, 11:49 AM   #3
Cal-Gal
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Re: Short term disability

Read the same about long-term disability and the pre-req having to be Stage IV. Do not know policy about short term--but would be very interested in the outcome/answer.

Good Luck Cynthia!!!
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DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 11-02-2009, 12:37 PM   #4
rl2
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Re: Short term disability

does your employer offer short term disability policy? I believe TN is not a state that requires it.
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Old 11-02-2009, 03:58 PM   #5
Brenda_D
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Posts: 368
Re: Short term disability

Actually, SSD requires that you be unable to work for a period of at least 1 year, or be diagnosed with one of the following and unable to work-


13.10 Breast (except sarcoma—13.04) (See 13.00K4.)

A. Locally advanced carcinoma (inflammatory carcinoma, tumor of any size with direct extension to the chest wall or skin, tumor of any size with metastases to the ipsilateral internal mammary nodes.

B. Carcinoma with distant metastases.

OR

C. Recurrent carcinoma, except local recurrence that remits with antineoplastic therapy.

from their website-
http://www.ssa.gov/disability/profes...dult.htm#13.10

or if you are stage4 you can apply and be approved quickly through their compassionate allowance program-

http://www.socialsecurity.gov/compas...conditions.htm

I am stage 3 and was able to get SSD without any problem due to being unable to work for at least 1 year, and having the "tumor of any size with metastases to the ipsilateral internal mammary nodes".

I went to rads with a lady that was stage2 and had micro invasion in a few nodes. She asked her doctor about SSD and he that she wouldn't be able to get it.
To me, the key is having at least one of your doctors write a statement that you are medically unable to work for at least a year. But not fitting into one of those categories I listed, will make it hard to get SSD. You'll have to go through the long process. Even then, they can review you at 1 year and see if you are able to return to work.
Everyone is supposed to get reviewed on a 1, 3 or 7 year schedule, depending on how severe your disease is.
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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Old 11-03-2009, 06:22 AM   #6
cynthia1962
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Re: Short term disability

Thanks all for your advice,

My doctor has written a letter to the Nashville Social Security Administration that he does not want me to work until I become stronger enough to work and the length of my treatments would be 1 year so I think that if I am not able to work for 1year with that statement. and i am not working or have a job now no employer is going to let me take off work every three weeks to do treatments. And I do have an attorney that states the same thing.
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Age 47, TN
Infiltrating Ductal Carcinoma of Breast, Grade 2 Stage IIA, Estrogen Receptor Positive, Gross Description 0.5cm up to 1.2cm in length with an average diameter of 0.1cm
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