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10-04-2009, 08:48 AM
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#1
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Senior Member
Join Date: Jul 2006
Posts: 463
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shower card
How refreshing. An October promo that tells the truth:
tinyurl: http://tinyurl.com/yc6nwu8
On my computer, the link opens a blank webpage and a PDF downloads separately (and more slowly) with the shower card. It can be printed, folded, and cut out to resemble a shower card.
On the shower card, you'll see a link to the new website of NBCC, which is still a work in progress but is looking good. For October, they are doing "a myth a day" about breast cancer and it's informative.
Debbie
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10-04-2009, 01:06 PM
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#2
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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Re: shower card
It is good to get the word out concerning Breast Cancer Myths. My only problem though is with Step #2 on this Shower Card where it says "Get Angry". It goes on to say: "Billions of dollars are spent every year on breast cancer research, programs, treatment and care, yet we still don't have prevention and a cure. Get angry about the wasted funding that goes toward ineffective programs and meaningless research. Realize that you are only hearing part of the story when a new breakthrough is touted, or clinical studies and findinga re reported. . . "
There was a time that many thought that Dr. Slamon's research fell into the category of " wasted funding, ineffective and meaningless research". Thank goodness he and Herceptin prevailed. As a scientist, I uderstand that research goes hand in hand with trial and error. If it weren't for trying and failing at first, some successes might never have happened.
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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10-04-2009, 03:44 PM
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#3
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Senior Member
Join Date: Jul 2006
Posts: 463
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Re: shower card
Well actually, Alice, NBCC was an important player in the Slamon/Herceptin story - you may have read about the difference that their support made, in the book HER2, or seen it in the recent movie (jeeze, 'can't remember the name of it). I don't remember who played Fran Visco (head of NBCC), but her character was in the movie. NBCC had Dennis Slamon as a featured speaker at this year's advocacy conference. They use the Herceptin story to show an example of innovative research.
What NBCC is referring to in the "wasted money" discussion is a topic that we're hearing more and more about r/t funding of research. It's not just NBCC that is bemoaning the fact that many researchers are not stepping out of the box (like Slamon did). Because of the way most funding is set up, it's the safe bets that are most likely to get funded. The safe bets may chip away at the knowledge base but at best give very incremental new understanding. Another issue is the number of nearly-duplicate research topics that are funded, with no coordination of goals.
Although I don't really relate to getting angry either, I do appreciate that those who are in closer touch with that emotion are often the ones who do get things done, and I'm grateful that they are there - those movers and shakers.
Debbie Laxague
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10-04-2009, 04:33 PM
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#4
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: shower card
Living Proof is the movie, starring the very adorable Harry Connick Jr. as Dr. Slamon. Amy Madigan played the role of Fran Visco.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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