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12-08-2008, 10:52 PM
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#1
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Hi from Madubois63
Just a quick note to say hello. I've been really busy and haven't visited the site in a few weeks. So sorry. You've all been on my mind. Anyway, I JUST picked up the dvd of Living Proof today and will make copies and send them out as soon as I get back from San Antonio. I have to finish packing tomorrow, cook for the kids and I have 2 doctor appointments. If I have the time, I will start making copies, but I am not counting on it. I'll be posting from the Symposium as much as possible, so talk to you soon...
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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12-09-2008, 03:05 AM
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#2
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Member
Join Date: Oct 2008
Location: Noosa, Australia
Posts: 7
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Thanks, I appreciate your efforts and look forward to a copy whenever you get a chance to send one.
Barbara
__________________
dx May 08, age 45
invasive ductal carcinoma 13mm
er- pr- her2+++
grade 3, no node involvement
2 lumpectomies June 08/July 08
FEC x3 Taxotere X3 (finish Dec 08)
Start Radiation & Herceptin Jan 09
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12-09-2008, 08:50 AM
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#3
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Have a safe trip and a wonderful time at the symposium. I am sure you will fill us in on all the latest. Good luck with your Dr. appts. talk to ya soon!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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12-09-2008, 12:23 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Thanks for thinking of us Maryann and I hope you have a safe trip and enjoy the conference. I'll be checking the highlights with interest.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-09-2008, 06:43 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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thank you maryann
Thank you for thinking of us. We look forward to hearing from you and hope you have a safe, fun time in Texas. Much love, Vickie
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Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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12-09-2008, 07:47 PM
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#6
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Smiles to everyone!!!! I am all packed, had my phlebotomy today, but my veins are shot and it was like milking a cow to get blood. My counts are good, my liver functions are going down again (good thing) and they are dropping my steroids down a bit (yeah). I think I remembered just about everything and got so much done today. I look forward to meeting everyone!!!!! Love and kisses to all....
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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12-09-2008, 10:35 PM
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#7
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Wow, how great it is that you are well enough to go to San Antonio. It wasn't all that long ago that I was sending prayers your way during your rough times. Enjoy! Sure wish I could have gone. How fun to be able to meet all the great people from this forum in person as well as learn all the up to date news.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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12-10-2008, 12:22 AM
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#8
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Mary Ann, have a great trip to San Antonio! Thanks for cking in!!
MA
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*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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12-10-2008, 12:43 AM
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#9
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Yes...thanks for checking in with us and letting us know all is well. I've sure noticed something about you Maryanne...you never stop, do you. lol Where on earth do you get all this energy?! (Maybe you could share some with me.) 
Here's to you having a WONDERFUL time in SA with the group. Have fun!
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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