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09-25-2008, 05:07 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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It's Happened Again
I'M NOT GETTING NOTIFIED W/CONTACT INFO IN THREADS I HAVE POSTED IN.
ANYONE ELSE? SHOULD I TAKE IT PERSONALLY??
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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09-25-2008, 05:12 PM
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#2
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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Nope. It happens to me as well. Sometimes I get notified, sometimes I don't. The Force is still with you , Andi.
Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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09-25-2008, 07:46 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Me too...it is off and on...
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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09-25-2008, 10:12 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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So far I've had no problems...knock on wood. It must be a small glitch caused from switching server's that needs worked out.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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09-26-2008, 05:49 AM
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#5
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Senior Member
Join Date: Nov 2006
Location: South Carolina
Posts: 183
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Hey Andi, and all
I know that has happend to me before too and it took awhile before I figured out why it was happening to me.
I realized that there are many times I forget to log on and e-mail notifications will not be sent unless we log back onto the site.
I doesn't seem that the rest of the forums work that way though. The forum "Keeping your mind off BC", I forget to return to that forum until I get an e-mail that a new reply has been posted so that has become a reminder for me.
__________________
Anita
er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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09-26-2008, 08:35 PM
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#6
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Actually, Andi, it is you. Several weeks ago, Joe and I were grilling some steaks and beer-drinking in his backyard. He seemed a little quiet, so I gripped his shoulder, looked him in the eye, and said, "what's wrong, Joe?" "Bill, this site has one too many members, and I'm not sure who to cut loose" I quickly offered to get him another beer and lifted the lid on the grill and flipped the steaks over, fanning the aroma towards Joe. "It's not me, is it, Joe? 'cause I can bring these steaks over anytime. I know a 'guy' than can gimme a good price". Joe took a big swig of his Michelob and waved his hand around,"No, it's not you, Bill" "Joe, you don't need to say it. I already know it's Andi, isn't it?" Joe teared up and just nodded yes into his beer, and then held his empty bottle out to me. I hauled ass into the kitchen and grabbed anothe one for him. Christine caught me, though, and said, "what's taking so long with the steaks out there?" "Uhhh, we just wanna get 'em right. I think they're almost done. Be right back!" I sprinted back to Joe with his fresh beer. "Joe, my brother, I had an idea. I can take care of this problem for you. What if we just don't notify Andi via e-mail whenever someone responds to a post she has made?" Joe whispered, "Bill, what if this can be traced back to me?" I looked him dead in the eye and said,"Sir, I will be your G. Gordon Liddy and you are my Nixon." Joe took a swig of beer, grinned, and said, "let's eat"
__________________
For Nicola
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09-27-2008, 05:32 AM
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#7
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hahahahahahahaha! Just had to respond. Geez Bill, why are you NOT an author. I'd buy your books - you are good!!!!!
Cheers,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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09-27-2008, 07:05 AM
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#8
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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It is off and on...
Bill terrific writing, you should be published!
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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09-27-2008, 04:59 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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oh bill, what a tale!
i get notified off and on so it's not just you andi!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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09-28-2008, 12:10 PM
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#10
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Computers Seem To Be Out To Get Me...
Here's the deal. I do not get along well with computers.
At my hair salon, I went to pay. The several receptionists were all Very busy. Finally, one (who I hadn't meant before) said, Okay, What's your name? I said, Andrea. Her mouth fell open and then she smiled. YOU'RE THE ONE. EVERY TIME WE TYPE IN YOUR NAME -- THE COMPUTER CRASHES! I swear, it is really weird. The other receptionists stopped and turned and said, It's true. Every time we enter your name the computer freezes.
I assured them that I was truly a nice person, and to please not take this mishap personally.
So now I have some clarity here with the malfunctioning notification thingy on this site. The HER2 site sees me and somehow senses my energy and ignores me. It's definitely not Joe. He loves me, I'm sure. How could he not??
But the site is acting very rudely at times lately, as you already know. I will try sending out a more receptive signal from here on. Maybe that'll work... Seems to be behaving since I rechanneled...
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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09-28-2008, 04:55 PM
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#11
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Andi, I think maybe the computer is in kahoots with your ego....and they are just trying to test your spirit's inner strength.
BTW, I have never noticed any lapses with threads I have posted.
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
Last edited by harrie; 09-28-2008 at 04:59 PM..
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09-28-2008, 05:25 PM
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#12
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Senior Member
Join Date: Oct 2007
Location: Australia
Posts: 309
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Hey Andi - you can always channel my way! :-)) I can just look at that beautiful photo of you and I feel well! LOL!
Love you folks ~ laughter is always the best medicine eh?
Blessings
Hermiracles (Marilyn;-))
__________________
2003 L/DCIS –> LWE: High G./Comedo - 6 nodes clear 6 wks Rx
04/07 2 miracles born ~ very grateful
06/07 Susp areas L/b
09/07 Stage 2 bilat. mastectomy R/ b. clear extens DCIS/IDC Paget’s 8 nodes clear ER(<5%) HER2+++ CT clear
11/07 Portacath - FEC
15/11/07 Stage 4 Emerg op - hip replacemt #NOF bone mets H/Taxotere
12/07 Rx to 'spots' on spine/R/hip/femur 3wkly H
2008 H+T mets to rib/sternum? Aredia CT clear! Cont. H + Aredia 07/08 1 wk Palliative Care - mets to lungs + ?1 to brain
09/08 Stop H complete Epirubicin 1wk PC new brain mets
10/08 2wks WBR 1wk PC 22/10/08 Tykerb/Xeloda 12/08 6 CEREBRAL METS COMPLETELY GONE! Rib mets down to <1cm.
01/09 Tumour markers normal! Rx to L/arm
03/09 LUNGS CLEAR (ALL NODULES GONE!), brain clear, liver clear. Bones stable! ~ THANK YOU GOD
07/09 Repeat CT Scan ~ ALL organs clear apart from bones which remain stable. I walk in gratitude.
***************
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09-29-2008, 07:11 AM
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#13
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Ego In Cahoots With The Devil
Hmmmm... Maryanne, you could be on to something here. Machines make me feel strikingly inadequate, vulnerable, helpless and ill-equipped. Just plain intimidated.
Egoically I wish and want this not to be so. This creates the intensity of wanting, which is confrontational and therefore wreaking with negativity.
Whereas when enthusiasm encounters obstacles in the form of adversity and uncooperative entities it walks around them by yielding the opposing energy and turning it into a helpful one. The foe becomes the friend.
Enthusiasm and ego cannot coexist. Much like faith and fear.
Just now I accidentally hit a button on my remote control and my TV is total static. I have frustratedly pushed every button on the remote to rectify the problem and -- nuttin.
Now of I can find a way to *channel* (no pun intended) my frustration and fear into enthusiasm, I could perhaps rectify my problem. OR -- I could wait till Paul comes home and let him fix it in a jiff.
Note I have given up (at least temporarily) and am catching up on e's. Much more productive at the moment.
Is ego akin to evil forces, do you think? I am suddenly seeing that you add a *d* to evil -- you have the devil. Just thinking out loud. So to speak...
The voice in my head says you are a dolt Andrea and you will never defeat the static situation. I am going back in there, armed with my Spiritual connection and see what I can do. I AM STRONG, BRAVE AND DETERMINED...
And I am channeling major positive energy to you Hermi! To be sure!!
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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09-29-2008, 08:07 AM
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#14
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Lol
Bill that was priceless!! Thanks for the laugh!
(Sorry Andi)
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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09-29-2008, 09:29 AM
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#15
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Andi,
Nothing can make you feel inadequate without your permission.
And remember, I'll always fix your computer for you 
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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09-29-2008, 11:15 PM
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#16
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Good advice PinkGirl. Yea Andi, when you see the trauma coming your way, recognize it and deal with it in anyway OTHER then with fustration and irritability. You can always walk away and deal with it later. And what is good with computers is you can shut it down.
BTW...a quick story,....my computer was giving me h---. I was already to order a new one. I was deciding whether it was worth the price to pay a tech to come over and fix it or get a new one. Then the next day, I was cleaning the computer room and I just hit the on button and bingo...it just came on and acted normally. It has remained fine ever since. Wierd....totally wierd.....
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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09-30-2008, 11:41 AM
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#17
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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OH WISE ONES... what would I do without y'all???
When all seems lost (computer wise), my SIL tells me to -- REBOOT. Shut it down and restart it. Whatever was ailing the poor thing seems to vanish.
That works for us too. Like the Sabbath (an island in time) we can rejuvenate ourselves with a little rest. And prayer always help, of course.
So, Harriecanariebird, your positive Energy, tidying up, and having given yourSelf (and the puter) a reprieve seems to have to created a new reality! There's nothing weird about that.
Plus, maybe the puter heard, or sensed, your thoughts of doing away with it, and it wanted to prove to you that it wasn't dead yet. It's *Essence* was still alive.
Yes, Pink, I must remember that machines needn't be my undoing. I still have power to find a way we can get along. Midst utter exasperation that is most difficult to recall at the moment, but I will try to think of your wise words and assuage the issue. I can do this. I have faced breast cancer, as you and I always remind one another. That always serves to make me stronger.
Thanks, my Sisters. As for you Wild Bill, and your wild imaginings, you are entertaining to say the least. It is always good to laugh. Highly therapeutic. So I thank you too for your contribution(s)...
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-01-2008, 12:20 AM
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#18
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Andi, this may sound somewhat outlandish, but you obviously have a very strong spirit and you know how to keep it very ...hmmm, what word am I looking for....opposite of being surpressed. Anyways, your spirit must emit more energy out of your body then most people who are not as in touch with their inner selves. What I am leading up to is....maybe....the energy you give off somehow causes interference with the energy from computers. Told you this was an outlandish thought.
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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10-02-2008, 01:44 PM
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#19
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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This Makes Sense
Maryanne, I think we ALL HAVE A mighty force within us! If we learn to align ourSelves with our Spirit, which is our Truest Self, we begin to send out signals on a very high, fast frequency wave. Others sense and respond to this. So does the Universe. And, I am beginning to see -- so do inanimate objects!
Just staying connected to your Higher Self keeps you at an electrifyingly awesome pitch. We just have to learn to switch channels and stop identifying with the voice inside our heads. We have to start seeing the world through the eyes of our Soul, which is who and what we truly are.
Your outlandish notion is quite on target, Harriecanariebird.
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-02-2008, 11:28 PM
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#20
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Andi, I also feel like our minds and emotions can also build up like an insullation around our Spirit. I think the intention is like a protection-insullation, but in reality it is more like an inhibitory factor which prevents one from appreciating the true beauty of life.
The "only" good thing about that insullation I guess is that at least it can prevent a energy flow conflict with the computer and other electical devices creating malfunction! Kinda like a surge surpressor! LOL!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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