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Old 07-01-2008, 11:50 AM   #1
sassy
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Join Date: Sep 2005
Location: Mountains of Virginia
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BC Vaccine trial at Wake Forrest

This is a link to the Breast Cancer Vaccine trial at Wake Forrest University Medical Center, specific to HER2. The Coordinator is Robin Petro. They are seeking 100 participants and she currently has 2. Participants must be within 6 months of completing standard chemo and radiation.

I'm too far out, but hope there are others here who can benefit.

http://www.clinicaltrials.gov/ct2/sh...0524277&rank=1
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 07-01-2008, 03:36 PM   #2
dhealey
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Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
Sassy, Thanks for bringing this up. I tried several times and could not. (I am not computer savy). Just to give you an update. I got into the trial today and will be going to Wake Forest on Tuesday for bloodwork and sign a consent form. Almost didn't get in because my time frame out of treatment is so close. I am very excited to be able to participate. I will let you all know how things progress.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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