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Old 06-10-2008, 12:19 PM   #1
sarah
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help need suggestions cancer in ganglions around lungs
Hello,
I hope someone's had this problem and come through it. The liquid around the lungs of our friend with IBC, HER2, ER-PR- cancer has cancer in it. she's now on oxygen and I'm not sure anything else is being done. the answer is she's too weak for chemo but I don't see how she can recover if she doesn't get chemo or at least herceptin. She has cancer in the ganglions and I think a small tumor in the lungs and now her eye seems weird.
Please give me your advice. I am very worried for her.
help
sarah
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Old 06-10-2008, 04:43 PM   #2
Mary Anne in TX
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Wish I had an answer for you sarah, but I can pray for her. My best to you, ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 06-10-2008, 05:44 PM   #3
Joan M
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Sarah,

Can the liquid be drained?

I'm praying for your friend's recovery.

Best, Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 06-10-2008, 11:39 PM   #4
sarah
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they keep draining it and I was told they won't fill the drained cavity with talc, a common procedure apparently, because there's cancer there.
very worried
sarah
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Old 06-11-2008, 12:40 AM   #5
Lani
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I think the eye problem might be something called Horner's sydrome
and involves involvement of the nerves at the top of the lung which are on their way to the face and cause the eyelid to droop. Of course I could be wrong and she could have brain mets or even mets to the orbit around the eye.

I'm sorry I can't add more to the list of what trials there might be in France.

Don't know if I have really helped you with this info...

Hope some of the info already sent on trials proves useful.
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Old 06-11-2008, 04:42 AM   #6
sarah
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thank you Lani, as usual you have such knowledge information.
this is a wonderful site and I appreciate its existence so much, for myself, as well as for my friends.
stay well, be happy
sarah
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