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Old 05-19-2008, 11:58 AM   #1
jules9600
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kidney issues

Finished Herceptin a little over a year ago. Have been diagnosed with a catagory 3 solid mass lesion on top of left kidney. I know this is not a usual place for metasis. Seeing urologist next wednesday. Any info any of you have would be appreciated!
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Old 05-19-2008, 08:41 PM   #2
Joan M
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Jules, I'm sorry to hear that you have a solid mass in your kidney. I don't have specific information about kidney lesions, but I have experience with lung lesions and some of that may apply. First, your oncologist may want to find out first through a biopsy whether the lesion is a primary kidney lesion or metatstatic breast cancer. Second, if the lesion is metastatic breast cancer there is probably an option to remove the kidney or, if surgery is not an option for some reason, then you may be a candidate for radiofrequency ablation. I'm praying for a good outcome and perhaps a biopsy will show that the lesion is benign. Best, Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 05-20-2008, 04:24 AM   #3
dhealey
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Jules how did they diagnosis the kidney mass? I finished my herceptin in January and since the middle of March have had symptoms of a UTI, but the cultures grew out nothing. I have been on 3 different antibiodtics to no avail. Ct scans have been negative. Still have alot of low back pain and pelvic pain with blood in my urine. I am having a cystoscopy on Wed. I know something is not right they just can't pinpoint it. What kind of symptoms did you have? Praying all goes well with you. Please let me know how they proceed.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 05-20-2008, 06:23 AM   #4
Yorkiegirl
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Jules, I had been having bad lower back pain, they did an MRI and found that I have two cysts on my right kidney, it does flair up every now and then. With me they are keeping a watch on it.
Mine showed up about a year and few months after I finished my Herceptin. I hope all goes well for you
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Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 05-20-2008, 07:35 AM   #5
jules9600
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thanks for your support

Was diagnosed by accident. My bilirubin counts were going up. The oncologist ordered a liver scan. It was all ok but saw cyst on upper left kidney. Oncolgist referred it back to regular dr. He wanted to follow it up because of my cancer history. Turned out to be solid mass lesion not a cyst after an mri of kidney. From the research I have done, I suspect they will either take off the lesion or take the whole kidney and do biopsy. I have not had any symtoms. I did have a few kidney infections over the last six months. So, who knows?! Thanks for your help and kind words. I have been lurking here for a long time, and you are all great support!
Jules
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