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Old 05-17-2008, 05:26 AM   #1
Blanche
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Join Date: May 2007
Posts: 29
profile questions

Hi I have been reading and being blessed by this site for a year and half, and just recently I started writing more. Could someone tell me how to use this site such as:
profile, inspirational phrase and so on. Thanks, me and the computer are trying to develop more of a relationship. LOL (my daughter taught me that) Thank you Blanche
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Old 05-17-2008, 10:23 AM   #2
chrisy
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Location: Central Coast, CA
Posts: 3,207
Smile LOL is a great start!

Hi Blanche,

To edit your profile and signature, click on the User CP link on the upper left hand side of the screen. Here you can update your profile, which shows under your name, include a picture (your avatar) which would be over your name (the file has to be very small, tho, so you may need your daughter to help you compress the image!).

The part where people put their stats and inspirational quotes is in the signature.

We look forward to seeing more about you!
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 05-17-2008, 05:17 PM   #3
Jackie07
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Location: "Love never fails."
Posts: 5,808
Welcome, Blanche. I was just figuring out how to create a new thread. Also just realized that LOL stands for 'laughing out loud' instead of 'Lord, oh Lord'.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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Old 05-17-2008, 05:34 PM   #4
harrie
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Location: Hilo, Hawaii
Posts: 1,867
Blanche, if you want to chat, a bunch of us go on Sun 9:00 EST. Just click on "chat" and log on your name and password just like how you log onto this site. It is pretty fun. Just gets a little intense reading and trying to type as fast as you can!
Maryanne
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 05-17-2008, 06:09 PM   #5
harrie
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Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Blanche, I finally updated my profile so it is not so HUGE like before!! About time, yea??!!! LOL!!
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 05-17-2008, 08:06 PM   #6
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Jackie07

I like your LOL better....
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 05-18-2008, 07:49 AM   #7
Blanche
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Join Date: May 2007
Posts: 29
Hi, I went to control panels to type my profile. Hopefully it worked. I'm still deciding on an inspirational signature. I love everyone's they given me such encouragement I want mine to do the same. Blanche
__________________
dx Nov. 2006
bilateral masc. Jan.07
8 positive nodes
Her 2 positive pr & est. positive
stage 3a
large tumor unseen by mammogram
tissue expanders
4 ac 4 taxetere with herceptin
28 rads
completed herceptin in march
silicone exchange end of march
staph infection on left inplant
removed left inplant
maybe Diep reconstruction when all is healed
Arimidex
oopheractomy Nov. 2008
negative on brac 1 & 2
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Old 05-18-2008, 07:50 AM   #8
Blanche
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Join Date: May 2007
Posts: 29
yeah, It worked. Blanche
__________________
dx Nov. 2006
bilateral masc. Jan.07
8 positive nodes
Her 2 positive pr & est. positive
stage 3a
large tumor unseen by mammogram
tissue expanders
4 ac 4 taxetere with herceptin
28 rads
completed herceptin in march
silicone exchange end of march
staph infection on left inplant
removed left inplant
maybe Diep reconstruction when all is healed
Arimidex
oopheractomy Nov. 2008
negative on brac 1 & 2
Blanche is offline   Reply With Quote
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