Hello
Hi to all of you!
I have missed my daily visits. First the chemo I'm on kicked my butt, then I caught a bug and was very sick for a couple of weeks and then my computer caught a virus and I finally had to bring it in for repair/cure. So, I have not been online regularly since 2 days after Tip and Tex left my house. I have so much catching up to do.
I'm quite nervous as I have a PET and MRI this coming Thursday. I always get so worried. My friends try to reassure me and tell me to be positive, but it is hard - I'm always afraid I'm going to be told bad news and it will be the "end of the line". I try to remain optimistic, I'm a fighter - I know many of you understand.
Also, I remember reading someone questioning others about Cancer Centers of America, but then I wasn't online to read the replies. I am very frustrated by poor service etc. where I currently get treatment (this is nothing new, but all of the staff that worked in the scanning dept. quit and I feel it is the straw that has broken the camels back). If CC of A wasn't so far away (about a 7 hour drive) I wouldn't be agonizing so much. I am also worried about how I will/would be treated by the office where I am currently being treated, if say I needed weekly treatments to be administered there after I consult with them. I could explain at length why I'm so frustrated, but I don't think anyone needs to hear my whining. You have enough challenges of your own.
I would like feedback from others who have sought other opinions and treatments (how was it received, did you have to go back etc.). I would also like to hear from anyone who has went to Cancer Centers of America or knows someone who did.
I live in Upper Michigan and there are not a lot of choices as far as where to go for treatment nearby. How far should I go? Across the country? Into the lake? :-)
Many of you are wise about all of this and I sure could use your help and advice. Feel free to email me if you do not wish to post here.
Thank you to all of you who decide to provide me with information/opinions.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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