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04-08-2008, 08:08 PM
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#1
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Sugery cancelled
Well, no surgery for me tomorrow. I have a really bad cough and very low red blood counts. Tomorrow I will have a blood transfusion.
ALSO.........my chest x-ray showed a tiny pleural effusion. It is so small that they can not drain it. I will have another ct scan that should define the area better. They are not sure if it is cancer. I will have a muga to determine heart function and my EKG showed my heart beats at 130 per minute which is high. Dr thinks it may be related to poor heart function. Has anyone had a pleural effusion that was not cancerous?
Just a little worried right now.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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04-08-2008, 09:36 PM
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#2
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Yep, I"ve had several through the years that never lit up on the pet scan, although they were mentioned on the CT. They'd be gone by the next scan. My Oncologist has never been worried about anything that didn't light up. There are other things that cause effusions beside cancer. Try not to worry too much till something is determined for sure. Especially with it being so small, they will keep an eye on it. Have they done a PET/CT?...sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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04-09-2008, 05:10 AM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Dear Tonya,
I'm so sorry this has all happened. How frustrating and worrisome for you. I can only imagine.
Tonya, I have prayed that this situation will resolve itself quickly and that surgery will be able to happen soon.
I'm sorry Tonya....I truly am.
Wrapping you in prayer dear friend,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
Last edited by Mary Jo; 04-09-2008 at 05:11 AM..
Reason: spelling
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04-09-2008, 09:49 AM
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#4
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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I'd be sad, but I'm too mad!
When I read your post, my heart wanted to sink into sadness for you, but I got so mad about it, that's all I could do. Darn, darn, darn. More delays! Well, maybe you have to wait a bit more, but I'm betting everything will get fixed up for you. My heart beat like crazy fast while I was on Navelbine and Herceptin. Kept thinking it would just pop out of me! I don't know one thing about the pleural effusion but I love that they are attacking it quickly. Tonya, I know your count is low and you're sick. So is that why they are doing the transfusion? Your counts are really low?
I just want to stand and scream to that ol' set of lungs and heart to shape up, "the lady has a life to live and an adorable family to love on"!
You're tough, Tonya, and full of purpose! Get determined to have your way in all this, girl! I'll be thinking wonderful thoughts for ya and praying for the doctors to be wise and creative with their care for you. Tons of love being sent your way today & all the upcoming ones as you win your battle. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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04-09-2008, 10:33 AM
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#5
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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Tonya
Sorry to hear of your complications regarding your journey. We are here to say that YES, Ed had a 'Pleural Thoracentisis' done since he did have pleural effusions on the chest wall that was where the inflammatory BC showed up in the beginning.
And NO, Sweetheart......no malignant cells....yeehaa!!
My wishes are that the same holds true for you. Keep us posted on your new path on this journey. I am so sorry for the delays but thankful that they spotted issues beforehand. Right now I will be praying for good heart function and no malignant cells. Lots of Love>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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04-09-2008, 10:39 AM
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#6
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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Dear Tonya:
I am sorry that all this is happening to you. I know that delays and worrying are often times more taxing than the surgery itself.
I hope and pray that things will settle down quickly so you can get your life back.
Lee
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04-09-2008, 10:52 AM
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#7
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Oh Tonya, I can feel your disappointment! I am hopeful that the surgery will be back on schedule really soon.
Saying prayers fro healing to your lungs and no more ca!
HUgs,
Lexi
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04-09-2008, 01:27 PM
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#8
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Tonya i am so sorry things had to be postponed. Hopefully you'll feel better soon and things will get rescheduled.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-09-2008, 01:57 PM
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#9
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Tonya ,
the waiting really stinks, doesnt it? I am so sorry for the delay but hopefully this will give your Docs a chance to boost your counts and strength so that you'll recover from surgery faster. I sure hope so!
Big hug, Marcia
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04-09-2008, 03:43 PM
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#10
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Senior Member
Join Date: Jan 2008
Posts: 305
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I am so sorry to hear of your problems - I hope everything turns out OK for you.
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04-09-2008, 04:00 PM
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#11
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Tonya, please add me to the long list of those praying for you and your family. Love, Bill
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04-09-2008, 05:54 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Tonya
I am sorry about your setback but remember, its just alittle setback. That post surgical bloodwork is done for a reason and that's so you heal well and gain your strength back quickly after surgery. And a bit of pleural effusion can mean nothing at all.
Get that red count up! Did your doc have you take Slow FE (iron) or B12. I know the transfusion will work well (but - hint, hint - it takes all day to get a pint transfused as they drip it in a drop a minute (practically)).
Have heart and keep faithful and strong. I know you will. This is pass and you will move onto surgery. I just know that it is scary and more than just worrisome but you will make it through and past this obstacle.
Huge hug and love to you
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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04-10-2008, 06:40 AM
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#13
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hi Faith
Sorry about all of this. You always sound so strong and
determined and organized - I know you will get through
this glitch and be strong for the surgery when the day
arrives.
Becky gave some good advice regarding nutrition but did
you know that there are essential trace elements of iron
in chocolate???? You'd have to eat quite a bit of it but
I could do it 
Good luck with all of this and please keep us posted.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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04-10-2008, 03:13 PM
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#14
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Tonya!
How was the blood transfusion. Surely have been thinking good thoughts for you!
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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04-10-2008, 03:32 PM
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#15
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Hi Mary Anne,
Thanks for checking on me. So I'll make a long story short. I went to my onc. the next day for the blood transfusion. He told me my blood count was 9.7 to good for a blood transfusion. (I'm not sure what the Surgeon was looking at.) But I had the bad cough and shortness of breath which I thought was caused by the low red blood count. Onc. got very concerned and ordered a ct scan immediately since he though I may have a blood clot. The ct scan did not show a blood clot nor did it show the plureal effusion. It did show hazziness in both lungs but no masses.
The hazziness can be cause by three things: the disease, an reaction to the chemo, or an infection. So I am on meds right now and they have seemed to help a little. I meet with the lung specialist soon. I am praying that it is not the disease.
I'll keep you posted. What a roller coaster!
Hugs,
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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04-10-2008, 03:54 PM
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#16
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Senior Member
Join Date: Apr 2008
Location: NY
Posts: 240
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Hi Tonya - I hope the meds get you back to normal so you can proceed with your surgery. I went into my surgery with a 100.4 fever and no one blinked an eye (well, the nurse did for a minute, but since I wasn't coughing at that time, the anesthesiologist said I was good to go.) The bad news is that I ended up very sick after my surgery - when I couldn't cough due to abdominal pain after the Diep, and my leg swelled up, I was back in the ER because I thought I had a blood clot. Turned out I actually had a staph infection.........so, the lesson learned is to NEVER proceed with surgery if you are even slightly sick. Your immune system will have enough to contend with recovering from surgery! "Haste makes waste" - so take it easy Tonya and try to rest and eat well and get better soon!
__________________
xxoo
Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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04-10-2008, 04:28 PM
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#17
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Well, in another place and time, who would be praying for an infection??? Well, I will! Hope the meds knock the socks off the infection and get you back on the path to surgery! Isn't it just amazing how 1 set of eyes sees one thing and another set sees something else completely!!! You're closer today than yesterday. It's like going to Denver to get to Houston and you live in Florida! But you're getting there, girl!!!! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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