Pain after chemo an rads
Hi my Friends! I need you.
I did not post much lately because I am discouraged. And I was ashamed to post pain problems when others were fighting a stage IV.
I have severe neuropathy in my arm since the mastectomy for which I take Neurontin. One year after surgery now and no improvement. I am surprised why nobody ever mentions this terrible "side effect" as a risk and there are no Doctors working to prevent it.
But on top of that I have horrible pain in the upper part of my back since the end of the chemo+surgery+radiation. That was last April. I take Morphine to be able to stand it.
The Doctors made me stop Aromasine and Tykerb for a month to see what is coming from the treatment and what may be damage from the initial treatment. Of course I had an MRI of my spine and it is fine.
It has been 2 weeks now and the only improvements are the joint pains and more energy.
I am very very worried. I was hoping the pain was coming from my treatment.
Did you ever hear about nerve or muscle damage after Chemo/ Radiation that could cause such damage as the doctors seem to think?
Any articles on that?
Thank you for your help. I am very down.
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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