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02-01-2008, 06:20 PM
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#1
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Is Coffee ok?
I know this may be a strange question but I have been trying not to have coffee ever since my original dx last year. My doctors have told me it is ok to drink it. I worry about the caffine but sure do miss it.
What do you think?
Thanks
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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02-01-2008, 06:55 PM
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#2
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Senior Member
Join Date: Sep 2005
Posts: 232
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Tonya,
I do drink coffee because it is the one thing I really love. I didn't during treatment, only because I just didn't have a taste for it. I drink two cups a day, that's all.
Karen
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02-01-2008, 07:00 PM
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#3
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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 I scanned the internet and did not see any indications that caffeine is not advisable in women with breast cancer. (exception---high caffeine intake may disturb sleep patterns and women who have high blood pressure or irregular heartbeat should avoid or restrict caffeine.)
So go ahead --- have a cup  and enjoy!
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02-01-2008, 07:10 PM
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#4
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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Basically in term of BC impact seems to me that there is no clear answer. The same debates is true for soy (some say yes, some say no, some say it depends) coffee like soy is a phyto oestrogen (oestradiol)**
I was however surprised by the following article showing it is good against (certain) BC:
http://www.medicalnewstoday.com/articles/35734.php (I do not know who commissioned the study)
I have stopped coffee myself too and quite frankly when I drink the stuff again now and again, I have heart palpitation and an acid stomach (and for sure proven to be not good for bones) which kind of tell me that it is not generally not right to drink on a regular basis,but hey that's me.. (But from the above it may not be as bad or even good, although there are healthier source of phyto oetrogen if one think it helps.)
Like you I am Er- so the fact that it has phyto oestrogen might not matter anyway.
Sorry no clear cut answer..yet again, you'll have to decide for yourself..everything in moderation i suppose
_____________________________
**
The researchers took blood samples during the first five days of the women’s menstrual cycles to measure hormone levels. Then the women answered detailed questions about their height, weight, eating habits, alcohol and caffeine consumption, and smoking habits.
When they analysed the data, the researchers found that women who drank more than one cup of coffee per day had significantly higher levels of oestradiol (a form of oestrogen) than women who didn’t drink coffee. Women who consumed about 500 mg of caffeine each day (the equivalent of about four or five cups of coffee) had nearly 70 percent more oestrogen in their blood than women whose caffeine consumption was under 100 mg per day. These findings are significant because circulating oestrogen levels have been linked with many serious health conditions, including breast pain, endometriosis, and breast and ovarian cancer.
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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02-01-2008, 10:15 PM
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#5
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Dear Tonya,
My doctor in Mexico who has been treating me since all this started, has just recommended to avoid drinks with caffeine such as coffee, tea, and cola drinks. He also advised not to consume chocolate. I am not that good at avoiding these drinks, coffee is what keeps me going every morning at the office. I think that if you enjoy coffee, go ahead and have a little when you just feel like it.
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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02-01-2008, 11:23 PM
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#6
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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speaking of coffee....
Towards the end of my herceptin treatments, the nurses were not able to find a good vein as easy as they did in the beginning. (My treatments were usually first thing in the morning). Routinely I would drink my coffee in the morning and then head on over for my treatment. During my treatment I would consume my bottles of water. With some experimentation I have found that if I drank plenty of water at home prior to my treatment, instead of coffee, I would be much better hydrated and finding that vein was easier. Then during the treatment I would have my one cup of coffee which i love.
Harrie (maryanne)
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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02-02-2008, 12:05 AM
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#7
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Wow, Tonya, caffeine is a difficult habit to quit. I've done it before, but at the cost of an unrelenting headache. I'm only a layman, but in my opinion, with moderate caffeine use, from what I've read, if you don't have any heart-related or blood pressure issues, you should be ok. Having said that, you're on herceptin, hopefully having periodic echos. There are some benefits to moderate caffeine intake. Extra energy, it does stimulate concentration and clear thinking, gives you extra strength. I don't know enough about the chemical effects of caffeine on cancer cells, if that's your line of questioning, but there is something to be said for waking up in the morning and grabbing a cup of coffee and strolling out back to watch the sun rise. You strike a balance between the chemical physical intake of the caffeine and the emotional, physiological experience, which may outweigh the harmful physical impacts, I don't know. Tonya, I think a cup of coffee or two is good for you if you enjoy it, Bill
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02-02-2008, 06:53 AM
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#8
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I drink about 2 cups of coffee every day. I also eat choc. and sometimes more than I should - more sugar than I should too actually. I do my best - exericise daily - eat well (other than when I have that choc. and sugary stuff) take my cod liver oil daily, 1 T of olive oil and just a few supplements - D3, magnesium and a multi. That's it.
My philosphy - do the best you can but enjoy your life. Life's too short to quit all you enjoy for fear of something happening. That's just me though. We all "gotta do what we all gotta do" though.
Love & Peace,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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02-02-2008, 07:49 AM
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#9
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Deceased
Join Date: Oct 2005
Location: Chadds Ford, Pa
Posts: 206
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You said it, Mary Jo! Moderation ladies, but we have been through too much to deny ourselves a little bit of the things we really enjoy! I have one cup of coffee and a little piece of chocolate every day (FOR ME!) and have just passed my 4 year survival mark (2.5 years with metastatic disease). Do things that make you happy!
__________________
Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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02-02-2008, 11:38 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Pro's and con's
I've been "decaffed" for almost 5 years, but this is interesting since I have an aunt who died of ovarian cancer:
http://www.medicalnewstoday.com/articles/94693.php
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02-02-2008, 05:00 PM
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#11
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Senior Member
Join Date: Sep 2006
Location: Nebraska
Posts: 154
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i thought i read once that coffee has i think tanneic acid in it that is good for you? Maybe someone else could elaborate
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02-02-2008, 05:31 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Coffee has antioxidants in it. Not as much as tea and its benefits. All I can say is I drink it - 3+ cups - all in the morning. I have some tea in the afternoon
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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