T side effects, last status
This is the latest status of my side effects on Tykerb. I am only taking Tykerb now. (And Aromasine). It started OK but now after 6 weeks;
Fatigue,
Thusrt
Hand and Feet syndrome came back. I had it on Taxol but it had stopped 3 months after end of chemo.
Previously existing pains seem much worse: neuropathy in arm, important pain in back
Acne type pimples around nose, on shoulders
Rash on neck and back
Diarrhea, stomach pain
My onc told me to take it 4 weeks and stop 2 weeks. I do not know why this is better than reducing the number of pills from 5 to 4 .
I have stopped working for the first time although I have had some very difficult episodes before from the treatments and was still suffering from some.
However..I will continue!
Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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