 |
10-12-2007, 02:28 PM
|
#1
|
|
Guest
|
Knee Mets? Question for a friend
A friend (Stage IIIc, HER2 negative, ER/PR positive) is having great anxiety as she just had the results of an MRI to the knee, where she has been having great pain. The radiologist found something suspect and has suggested she get a bone scan. She is very worried that it's cancer. I've searched this site and can't find any references to knee mets. Any information would be appreciated.
|
|
|
|
|
10-12-2007, 09:35 PM
|
#2
|
|
Senior Member
Join Date: Oct 2005
Posts: 3,519
|
Hi Grace. Never heard of knee mets either, hopefully someone will have some info. I just wanted to say hi! Have you been busy, stranger?
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
|
|
|
|
10-13-2007, 12:03 AM
|
#3
|
|
Guest
|
Hi Brenda,
I hope you're right. She's in a bit of a panic right now and I was hoping to find information to reassure her. I checked the internet as well and found nothing.
I've been dealing with change of season cold and still fixing up our house in Maine--it needs lots and lots of work. But on November 1 I plan to go back to writing. Right now trying to come up with an interesting plot, but not having much luck.
How are you? And how are the cats? You sound well from your posts. I still visit the board every day, just not posting as much. Stay well and thanks for thinking of me.
|
|
|
|
|
10-13-2007, 08:10 AM
|
#4
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Hey Grace
It must be prime leaf watching right about now! Most bone mets are in the torso (shoulders to hips and everything in between - like the ribs or spine) so a knee met would be weird. But alot of junk can be found on the knees and ankles as they take alot of abuse from running, sports etc so old injuries can really light up. My ankles look like Christmas trees and God only knows what a wreck my knees are from running and jogging!
I am sure she will find osteoarthritis or some other malady (bone on bone or cartilage defect) as these are more common than a knee met.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
|
|
10-13-2007, 08:17 AM
|
#5
|
|
Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
|
knees
Hi Grace
I guess anything can happen with this disease, but knee mets sounds a big strange. I agree with Becky about all the wear and tear our joints get. I
was once waiting for results of a bone scan, nervous as ever, and all they
saw was my messed up feet and ankles - they lit up and showed major inflammation. Hope this is just a plain old knee problem - they are very common. Good luck to you and your friend.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
|
|
|
|
|
10-13-2007, 08:51 AM
|
#6
|
|
Guest
|
Thanks all. I copied your posts and sent them to Patty as she is really in a panic. I hope we're all right--I think we are.
Becky--about leaf season. I was surprised at how interesting the changes are in Maine. We had a place in the Catskills once and it was beautiful there, but here the mixture of the green pines in between the golds and reds is spectacular. Makes me almost welcome all the work involved in being here--almost.
|
|
|
|
|
10-13-2007, 02:08 PM
|
#7
|
|
Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
|
I hope it is not a knee met, but I have a met in my femur which extends almost to my knee. They are very concerned about it because I would not be a candidate for a rod in my leg to strengthen the bone due to the proximity to the knee. Please keep us posted...I hope it is wrong.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 08:41 PM.
|
Linear Mode
