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10-10-2007, 04:47 PM
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#1
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Update
Hi Ladies,
Been keeping up but not posting for awhile mostly because I have been so emotional and don't make any sense. The last time I posted I believed I had developed lymphadema after my total hip replacement surgery. Not so. Yes good news, but what was next to come was not. All of my joints were swollen, crunchy and I was more tired and some days could barely move. It seems I have an arthritis that is inflammatory - as described by my rheumatologist this falls under an umbrella that something else will manifest itself ie ..Inflammatory bowel disease, psoriatic arthritis. I just wait and hope nothing else does manifest. I reluctantly started Enbrel (which helps) but because it lowers the immune system a side effect is lymphoma w/ my b.c diagnosis and the fact that 3 family members have had non-hodgkins lymphoma I am sure thats next. My emotions have run the gamit from sad, angry, thankful its not bc again but pissed because its a chronic disease. I know you all can relate one way or another!
I am coming to terms and when I wake up say thank you for giving me another day to help my children grow.
As always I continue to keep you and your family members in my prayers
Mary
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
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10-10-2007, 05:46 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Mary
Do not be inhibited to come here and post while emotional. We don't mind. That's part of the reason we are here anyway - to support each other through thick and thin.
It helps all of us to help you and each other. Sorry you are crunchy - at least you are not lumpy (audience laughs now!)
Your new med will work and help out with your joints. Secondly, even though inflammation is not our friend, the associated immune response throughout the body to inflammation is not our friend either (even for cancer). Although the new drug you are taking has some noted risks, you can try to balance that out by eating right and getting some exercise. If walking is not in the cards, yoga certainly is great for the joints and it is peaceful and destresses too.
I will be keeping you in my thoughts.
Love and a hug to you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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10-10-2007, 07:17 PM
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#3
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Senior Member
Join Date: Nov 2006
Posts: 42
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I understand the roller coaster ride of emotions and on-going issues....and, I am "virtually" sending you a hug.
__________________
Susie Q - North San Diego
Diagnosis at Age 41 on 10/6/06
~3cm Invasive Ductal Carcinoma Left Breast Stage II
~ER+ 45% Moderate ~ PR+ 62% Strong
~HER2/neu +++
~Sentinel Node Biopsy - Negative Four Nodes
~BRAC1/BRAC2 Negative
~Neo-adjuvant Chemo:6 rounds-every Three
Weeks of Taxotere & Carboplatin & Herceptin
Weekly Completed on 2/7/2007
~Lumpectomy (after chemo) 3/12/2007
~Switched to Every 3-week Herceptin 3/21/2007 for nine more months.
~Radiation May through June 2007 (35 rads total)
~Hormone therapy Lupron Injections + Arimidex
~Lymphedema Challenged!
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10-11-2007, 05:21 PM
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#4
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Thanks
I can always rely on this group for a boost.
Hugs back at ya.
Mary
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
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10-11-2007, 07:37 PM
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#5
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Mary,
I can certainly understand you emotions. Any inflammation is hard to deal with. Your doctor is on board and has prescribed some good medication for your arthritis. Please just try and remain positive. Think about today and not about what may happen. I will keep you in my prayers
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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