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10-03-2007, 10:26 AM
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#1
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Senior Member
Join Date: Jan 2007
Posts: 368
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Update on treatment
I worked things out on my Herceptin treatment. Since the Onc was already writing off the provider discount, they will write it off for me now, instead of the insurance co.
I also asked for a new Pet scan, to see what my positive IM node is up to after chemo, rads, and now Herceptin.
I've also been having some pretty strong pain in my lower back and hip joints, so we need to see what's up with that. It could just be a side effect of H, but I'd like to know for sure, since it's getting worse.
I'll update you all when I get that scan.
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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10-03-2007, 05:32 PM
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#2
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Glad you were able to work this out Brenda - prayers were answered.
Now you can concentrate on getting well.
Hope the scan shows nothing at all - I'm hoping that your joint pain is just the s/e from Herceptin that many of us experience.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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10-03-2007, 06:40 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Brenda,
Glad you managed to work things out. It is important to make sure that the pain in your lower back and hips is nothing more than a side effect of the Herceptin. I know I have a lot of bone/joint pain with the Herceptin.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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10-04-2007, 06:43 AM
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#4
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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happy
Hi Brenda
I'm very happy that you got things worked out and will be able to finish your Herceptin treatment. Good luck with the scans. I'll keep my fingers and toes crossed for you.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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10-04-2007, 06:46 AM
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#5
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Senior Member
Join Date: Jan 2007
Posts: 368
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Thanks Ladies. 
I will let you know what the scan says.
I am one of those patients that get copies of scans and reports, so I can look at it myself.
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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10-05-2007, 07:54 PM
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#6
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Good luck with the scans!
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10-05-2007, 08:10 PM
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#7
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hope your scans go well Brenda. I'm sure they will. I, too, had lots of joint pain while on herceptin. Taxol also but then again while on Taxol I was also receiving herceptin. The joint pain continued throughout the entire year of herceptin. Hips and knees especially. It's gone now though.
Hugs and Peace to you,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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