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Old 09-27-2007, 07:02 PM   #1
alw
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Join Date: Apr 2006
Posts: 63
Lani - Thank You

Lani,

I know there have been other posts saying the same - but I wanted to once again Thank You - for all that you add to this forum. The information that you work so hard to share, and the insight that you so generously provide, is incredibly helpful and valuable.

Fondly,

Amy
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Amy age 37 at dx
Feb 2008 Multifocal DCIS
Apr 2008 Bilateral Mastectomies

Sister to Laura age 37 at dx
April 2006
9 cm ER-/PR- Her2 +++/bone mets
neoadjuvant TCH plus Zometa
November 2006
bilateral mastectomy - Change to ER+/PR- Her2 +++
January 2007
innumerable tiny brain mets - WBR
March 2007
good response to WBR - some gone, all smaller
currently on Lapatinib and Xeloda
Feb 2008
Brain MRI: brain mets went from innumerable (jan '07) to 5 (june '07) to 3 (oct '07) to 1 that is getting less conspicuous(feb '08) PET/CT: Slight uptake in some sclerotic bone mets
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Old 09-27-2007, 08:37 PM   #2
Faith in Him
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Location: Northern California
Posts: 764
I agree with that. A big thank you. I always print out your post and keep them in a binder so I have them for future reference. It is important to be informed and you do a great job keepings us up to date.
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 09-27-2007, 10:50 PM   #3
Lani
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Posts: 4,778
You are very welcome!

If they are found helpful, or just are stored up as "ammunition" against a rainy day, they have served their purpose!
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Old 09-28-2007, 10:18 AM   #4
Julie2
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Posts: 556
I agree with everyone. Lani, you are doing a great job. I appreciate it so much.

Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 09-28-2007, 01:13 PM   #5
tricia keegan
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Location: Ireland
Posts: 3,463
Me too! Thank you lani, I don't know how you manage to find all this info for us but it's very much appreciated
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 09-28-2007, 01:20 PM   #6
R.B.
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Posts: 1,843
Thanks Lani.

You must be doing an awful lot of reading.

Many thanks for your long standing consistent efforts.

RB
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Old 09-28-2007, 08:05 PM   #7
Leslie's sister
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Location: So California
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Thank you!

I agree with everyone else. You are a Godsend Lani. Thank you thank you thank you!
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 09-28-2007, 08:41 PM   #8
jones7676
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Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
Red face Thank you

Thank you Lani for all your hard work and research!
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Barb

10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 09-28-2007, 08:44 PM   #9
Alice
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Smile

A Big Ditto from me !!!!
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