HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 09-23-2007, 09:26 AM   #1
BonnieR
Senior Member
 
BonnieR's Avatar
 
Join Date: Jun 2007
Posts: 2,210
"Normal" activities

Hello everyone. I hope this does not sound like a silly question. But I wondered how you all handle what used to be "normal" activities. I am asking because we have had several days of out of town guests visiting us this past week. My "best" week in the course of chemo. They did not stay with us, but they came here to see me. So I felt the need to be a "hostess" and entertain them briefly at home and out for meals. That sort of thing. Aside from tiring more easily, I was able to cope. But I did alot. And I wonder if I should be "conserving" my energy and not doing so much between chemo sessions? 3 weeks ago my blood count was low and I was given Nulesta and advised to avoid crowds etc. but have felt fairly perky since so I thought it would be okay to act "normal". How do you balance these things? Should I just let my body dictate?
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
BonnieR is offline   Reply With Quote
Old 09-23-2007, 10:03 AM   #2
Jeanette
Senior Member
 
Join Date: Oct 2005
Posts: 215
Smile Normal

I used to let my body dictate what I could or could not do. I did try and not overdo it though. I'm sure your friends understood if you got tired. I did feel really well though, being able to do some of the 'so called normal ' things. I found that if I got tired just resting for a few minutes worked wonders. Hugs, Jeanette
Jeanette is offline   Reply With Quote
Old 09-23-2007, 11:05 AM   #3
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Bonnie,

I have a terrible problem with my blood counts (both red and white) and am taking Nupogen shots and Procrit shots. I let my body tell me what it can and can't do. You soon learn to listen to your body -- if you're tired you rest, if you have the energy - use it up. I guess what I'm trying to say is to just do what you want, when you want adn if you have the energy to do it.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 09-23-2007, 02:57 PM   #4
PinkGirl
Senior Member
 
PinkGirl's Avatar
 
Join Date: Jul 2007
Location: Canada
Posts: 2,193
Talking normal

Hi Bonnie
I tried to take it easy and rest during my chemo. When I had good days, I acted "normal". I didn't worry about "having" to do things. If I didn't feel well, I told my family and friends that I was staying home. They always understood. Just one precaution: don't always go by how you are feeling; your white cell count can be very low without you feeling sick. I actually felt at my best when my counts were the lowest. Good luck..
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
PinkGirl is offline   Reply With Quote
Old 09-23-2007, 05:29 PM   #5
Mary Jo
Senior Member
 
Mary Jo's Avatar
 
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Like Pinkgirl, I let my body dictate my activity. I was fortunate in that for the most part I was able to do day to day activities ALMOST like normal. I had my days, yes, but I think I had more good days than I had bad days. I did what I could and when I couldn't TRIED not to let it get me down. I'm a doer - I'm stubborn and I have a mental thing that says "NOTHING is going to get me down." LOL! Of course, that mental thing proved me wrong on occasion BUT I pushed myself at times and tried to keep my life as normal as possible. It's what I had to do for me and my mental toughness throughout. It kept me sane.

Never feel as if you HAVE to do anything. If you can do and WANT to do then go for it. If you don't feel up to it or don't want too then don't.

Love & God's Peace I send,

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
Mary Jo is offline   Reply With Quote
Old 09-23-2007, 06:23 PM   #6
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
As everyone else said, let your body tell you what you need. Don't feel that you shouldn't do things though. After all, you are going though chemo and treatment to help ensure that you live. Therefore, go out and live it up!
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 09-23-2007, 08:25 PM   #7
chrisy
Senior Member
 
chrisy's Avatar
 
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
I found that living as close to "normal" life helped me stay sane. In fact, I made a point of seeing friends practically every week as laughing with friends made me feel bettwas healing for me.

I scaled back on what would have required "personal effort" of cooking, etc - and found it was a great excuse to eat out or do low key stuff like playing dominoes. As others have said, go with how you feel and do not push yourself beyond the limits your body is setting. Your top priority is to get well again - you can go back to whatever wild life you want after you are 100% again.
Also, within limits, it can be helpful to your immune system to maintain some sort of exercise regime - I walked regularly and I think this helped me maintain good blood counts.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
chrisy is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:19 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter