| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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09-02-2007, 11:20 PM
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#1
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Senior Member
Join Date: Feb 2006
Location: South Florida
Posts: 131
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Good news
Hello
I just returned from Houston, my brain is still NED and all my scans showed improvement. I am so Happy!
The Tykerb seems to be still working and I am so Thankful. I just celebrated my 2nd anniversary living with mets. I am Greatful for my wonderful Husband and for the doctors that are helping me live a better life.
Hope lives! I continue to chase sunrises.
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Lala
DX Fall05 Stage 4 er+ pr+ her2+ liver and bone mets
DX Fall06 Brain mets, Brain mets gone Spring 2007
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09-03-2007, 02:57 AM
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#2
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Lala, That is such great news. I hope you have many more years of NED! I love your picture of the beach.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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09-03-2007, 07:20 AM
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#3
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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Lala
congratulations for stard this week with good news ....keep it up and for so long time ...thanks for share
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Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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09-03-2007, 10:28 AM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 556
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Lala,
Congratulations for the good news. Wishing you many happy years ahead.
Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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09-04-2007, 02:59 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Oh Lala, your picture brings me such peace! I too love the water and find it very helpful to just soak up the view for some of God's creation. So glad your scans were good! Here's to many, many more years of NED!
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MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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09-04-2007, 03:35 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Lala,
Great news! Wishing you many more years of clear scans!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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09-04-2007, 04:08 PM
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#7
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Senior Member
Join Date: Jul 2007
Posts: 43
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that is awesome news to hear. i am happy for you. did you come to houston to go to MD ANDERSON.? i live in houston so next time your are planning to come to houston tell me and we could do lunch and i can give you a real hug. i am into my 9 month living with mets. so you are one of my inspirational sisters. dorinda
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nov 2006 dx. with bc. 3 tumors removed from left breast lumpectomy done. her2 postive er+pr-. scans showed extensive spine mets(to many to count) ,3 tumors on left rib,one tumor on skull and 3 tumors on liver. stage IV from get go. dec.2006 started chemo taxol and herceptine wkly. zometa monthly. rescanned in march 2007, liver tumors shrinking a little. bones to early to tell but pain is gone in my back. rescanned in june 2007. liver mets gone, bone scan looking better but still alot in my spine. still on taxol and herceptine. zometa monthly. rescanned in august due to ca 2729 going up. liver still good , mets in ribs and skull gone but multiple areas still on lumbar and sacrum. mri of brain august 07 negative for mets.I AM BELIEVLING GOD FOR MY HEALING.
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09-04-2007, 09:15 PM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Wonderful news... keep up the good work!
Dorinda - I go to Houston a few times a year (I live in Austin) - I will be sure and shoot you a message next time. We can meet and have a smoothie somewhere!
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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09-06-2007, 10:40 PM
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#9
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Senior Member
Join Date: Feb 2006
Location: South Florida
Posts: 131
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Dorinda
Thank you for the kind words. I often go to MDA, it's been a Blessing to me for sure. It would be great to meet some Cyber sisters there. Next time I head in that direction I will let you know.
How is your treatment going? I am cheering for you too! Hang in there sister!
Hugs to you,
__________________
Lala
DX Fall05 Stage 4 er+ pr+ her2+ liver and bone mets
DX Fall06 Brain mets, Brain mets gone Spring 2007
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09-06-2007, 10:49 PM
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#10
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Junior Member
Join Date: Jul 2007
Location: Palm City, Florida
Posts: 2
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Lala,
Congratulations!! That is great news.
I am a Stage IV survivor, on weekly Herceptin for almost 5 years. What a drug! I have visited this site a few times, but have never posted anything and although I am very computer literate, I have never been involved in a blog or chat or anything like this. I am now trying to find out if there is anyone out there who has stopped Herceptin and what the outcome has been. My oncologist is recommending that I come off of it - mainly to avoid damage to my heart although my MUGAs have been OK with the exception of once about a year ago when it dropped just under 50. You seem to be one of the only crazy people like me up at this hour. Where do you recommend that I post my question?
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09-06-2007, 11:21 PM
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#11
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Senior Member
Join Date: Feb 2006
Location: South Florida
Posts: 131
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Laurie
Congratulations on 5 years!!!
Welcome to the midnite hour lol... Tykerb awakes me.. I suggest you post it on the main Her2 board area..More people look over there. By the way, a friend of mine has been on herceptin since the Herceptin trials and still ticking no problems with her heart. So you never know. Hang in there and wish you the very best my late night friend.
__________________
Lala
DX Fall05 Stage 4 er+ pr+ her2+ liver and bone mets
DX Fall06 Brain mets, Brain mets gone Spring 2007
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09-07-2007, 12:00 AM
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#12
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Junior Member
Join Date: Jul 2007
Location: Palm City, Florida
Posts: 2
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Is she on this site? I'd like to talk to her and see what her doctors are recommending. Thanks for your help and God Bless and good night.
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09-07-2007, 11:18 AM
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#13
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Senior Member
Join Date: Feb 2006
Location: South Florida
Posts: 131
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Laurie
I sent you a private message.
__________________
Lala
DX Fall05 Stage 4 er+ pr+ her2+ liver and bone mets
DX Fall06 Brain mets, Brain mets gone Spring 2007
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