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Old 08-20-2007, 02:32 PM   #1
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Grace, How is the swollen foot???

Grace
You have been on my mind, just wondering how the foot was doing...still swollen, and also the shortness of breath...I am worried about you, please let us know you are oK.
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Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 08-20-2007, 04:34 PM   #2
Grace
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Hi Sheila,

Feet are still swollen, but they've evened out, so that right and left are now about the same size, which is what I've had for the last ten months. Still short of breath, which is a bit worse than previously, but I've decided it's herceptin-related, but not heart related as my last echo was June 29, and LVEF was 60%. Also had a stress test and did quite well.

I had this problem breathing early on and went to a pulmonologist to check for radiation fibrosis. There was no evidence of fibrosis, although my function tests were not good. I should, probably, see a doctor but this all started just as I got good news on thyroid, bone density, mammogram, tumor markers, and had my last herceptin. I don't think I'm up to another test for a while, and also we're moving on Sunday to Maine.

I'm watching it and if it gets worse I will see my doctor but I certainly appreciate all the concern I've gotten from so many of the women on the board. I've been packing so haven't been checking posts for a few days.
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