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Old 08-13-2007, 06:19 PM   #1
Mary Anne in TX
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Mammo Update!

What an adventure this mammogram has been! I called to see if they would give me the results of my mammo last Wed. over the phone; so that I wouldn't have to wait forever for a letter or drive an hour, but, "oh, no, we don't give information over the phone"!!!!
So, up I got, and headed for Corpus for "my letter"!!!
Got there and I didn't seem to exist! Then, I was discovered and "almost" handed a letter! As I talked to one of the technicians, she began to ask questions about my appt. As I told her the story about my circumstances, she was reading the letter, ready to hand it to me! All of a sudden she said (5 or 6 minutes after I had told her twice)...."you had a mastectomy?" Yes, I did. And as I looked at the brief letter and read that BOTH BREASTS showed slight calcification!!!! How interesting!!!!!
I pointed it out to her that the phrase, both breasts was not only impossible, but gave me pause if trusting any information I got from them, she began to back peddle.
She was a nice person. Didn't seem to have a clue what Her2 was or why getting the information at the time of mammo was important. She just kept saying...."when it's ONLY a screening we don't this and that"......
Started to scream, but hung in there to get my message across.
The bestest part is that they charged me for both sides!!!! How fun is that?
Well, needless to say, she grabbed the letter away as if it was gold and declared that she would call me tomorrow when the radiologist returned and she had time to show him the "problem"! Just can't wait for that call!
Who knows what they will say! But I wouldn't trust it no matter what! Guess I had better make that trip to San Antonio after all.
Once I calmed down, I had to laugh at the insanity of it all. And it also made me sad because of what I preceived as the attitude they have of "just a screening"!
Once again, I am so very grateful for the wonderful care I get at CTRC and the referrals they send me to. I am treated like I matter rather than being "just a screening"!
Thanks for listening! I had bad thoughts for a while this morning!!!!! Glad humor took over!
ma
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 08-13-2007, 07:30 PM   #2
tousled1
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Smile

Mary Anne,

I don't know how you managed to maintain your composure. I think I would have absolutely flew through the roof! How can something like that possibly happen -- did they even read the right mammo? It certainly seems worth the trip to San Antonio. I'm just in total amazement at how such a huge mistake could be made. I admire you that you didn't loose your temper -- you're a better woman than me.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 08-14-2007, 04:03 AM   #3
Mary Jo
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Wow Mary Anne.....................What a NIGHTMARE! Like Kate said, "to think something like that could even happen!" It's unconsiounable really!!!!! Oh well, I suppose "blowing a gasket" wouldn't have helped (although that's what I would have wanted to do) so good thing "humor" found ya! I look forward to chapter 2 of the story.

Hugs to you,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 08-14-2007, 04:32 AM   #4
Mary Anne in TX
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Kate and Mary Jo, thanks a million for your responses! I was mad as the dickens, but knew that wasn't what was needed with that person, although I felt like it. Had the radiologist been there, it might have been a different story. It was that attitude of "just a screening" that I was told by so many. Tells me what the "top of the heap" believes. Scares me the care that people without the knowledge gained here could get!
They are supposed to call me today with the "correct" information (oh, yea), so we'll see what happens. More later. Many thanks. ma
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 08-14-2007, 10:17 AM   #5
Mary Anne in TX
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Smile

Hello again.
Final update...the office called at 8:14 this morning to let me know that as soon as the radiologist came in he looked at my mammo and declared it fine. They told me that they did have all the information that I had given about my surgery and treatment, but somehow things just didn't work right! What a story!!!
They told me to be sure to come to the main office next time (really) and to be sure to tell them that I need a diagnostic rather than a screening mammo. They said that they would do diagnostic screenings up to 3 years after surgery. Can you even believe that?
Oh, well.....
Good to know that it was clear, but I'll still be glad to get the next information in December from an MRI!
Thanks again for listening, ma
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 08-14-2007, 10:45 AM   #6
Mary Jo
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Glad it all worked out Mary Anne. You know, I really don't have that much faith and/or trust in the so called medical professionals in some places (like the city I live in). I chose my surgery and oncology care in Milwaukee where I am treated as a person and not a number. The doctors and nurses really do know "their stuff" and truly do care. I live in a city of 50,000 people and the horror stories I could share about the medical "professionals" in my city are downright frightening. LOL! I always say that the doctors in my city must have gotten "C's" in medical school and that's why they are here.

Oh well............................glad it worked out for you Mary Anne. Hugs to you.

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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