Any advice, thoughts,opinions please; time running out

[wennydog]

My name is Donna and my partner's name is Pat. Pat was Dx with DCIS of the Rt breast in 2001. The surgeon who had special traing in breast cancer care said no onc was needed. She had a failed lumpectomy and the Rt mastectomy with an implant. No follow up treatment.

In 2003 Pat developed a cough lasting over 2 months. Finally PC doc suggested a bronch. What do you know, breast Ca in the lungs. Next bilateral thoracotomies for lung biopsies. Her2 pos ER- PR-. Onc began her on 6 months of navelbene, carboplat,herceptin.

2005 chest wall reoccurance, 6 more months of same chemo. 30 rads.
rads burnt chest wall---> infection---> IV antibiotics----> cdiff---> hospital for weeks.

June '06 enlarged lymph nodes on neck, then tumor on chest wall. 20 rads.

Fall '06 Pat begins with lymphedema Rt arm, shoulder and axilla with tumors under arm,cancer visible on mastectomy scar and epidermal spread down implant.I am located in Birmingham, Alabama but willing to go anywhere.

Jan '07 scans show more CA. Now Taxotere and Herceptin. Inflammation in the lungs and pneumonia stopped chemo after 2 treatments. Left vocal cord becomes paralyzed from CA to nerve, severe lymphedema. Next epirubicin, cytoxan and 5 FU. Pat becomes so weak she is no longer able to walk. High dose steriods given and gastric paresis developes and remains even after thre steroids are tapered down. Two rounds of this chemo have turned her into an invalid. She cannot eat or walk.They started TPN for a few days but now talking about a j tube. Now the onc says she may try docirubicin.

I hate this disease. Where did our lives go. I am presently writing this from her hospital room tonight. I feel myself begging, praying, for another remission and relief of her pain. Anyone with any ideas about trials or drugs for compassionate use please give input. Thank you for taking the time to read this. I am located in Birmingham Alabama, but willing to go anywhere.