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07-06-2007, 05:37 PM
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#1
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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This and that..................
Hi all,
Sharing a little bit of this and a little bit of that. Yesterday I went and met my brand new oncologist. He was awesome and I am happy I choose him. I told him that hopefully he and I don't develop too close of a relationship as I don't plan on going down this road - ie - chemo, radiation etc. ever again. God willing. He laughed and said "that is always our hope as well." Also, I don't have to see him again for 6 whole months (since I'm over the 2 year hurdle) and that made me really happy.
Today, I went and had a pink ribbon tattooed on the left side of my foot. Right below the pinkie toe - about 1/2 inch down. The tattoo itself is about 1 inch in height by 1/2 inch wide. I love it. It reminds me of ALL the life changing things that have happened to me since breast cancer. All the many blessings - wonderful people and the Peace the Lord has given to me.
Hugs to all,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-06-2007, 07:16 PM
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#2
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Glad that you like your new onc. Did getting the tatoo there hurt? How are you wearing shoes? When I got mine on the back of my shoulder I had to watch what I wore because it felt like I'd gotten a really bad sunburn.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-06-2007, 07:23 PM
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#3
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Senior Member
Join Date: Dec 2005
Posts: 274
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Hi Mary Jo,
I am so happy you like your new onc. That is so important. And I love the idea of the tattoo. Good for you. Thank God for good news.
God Bless,
Liz J.
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07-06-2007, 07:36 PM
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#4
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Marejo
That is great news that you felt at ease with the new onc., and even better news that you don't have to return for 6 months. Love the idea of the tattoo....something I've always wanted, but never done....had my chance when the plastic surgeon wanted to tattoo a nipple on me...I figure I am holding out for something better than a nipple...like a palm tree, a smiley face....anybody can get a nipple! Guess I need to take a flight to Miami...I would love to get mine done by Miami Ink. Someday....I will get it!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-06-2007, 08:06 PM
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#5
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Juanita,
I can wear shoes and socks in 3 days I was told. It's summertime now though so flip flops work just fine. I have no pain at all. It doesn't feel like a "sunburn" or anything for that matter. It is really small, so that is probably why.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-06-2007, 08:40 PM
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#6
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Senior Member
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
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how strange, I was just thinking today that
I am ready for my first tattoo. I have so many things I want I don't know what to get. I have been a huge U2 fan since I was a pre-teen and their music got me through a lot this past year. My 21 yr old nephew got a tattoo of my initials in Dec and did not know what I would think anout it. I told him as long as it does not have my birth year and death year I am okay with it. Plus I also want a pink ribon and a purple ribbon for lymphedema. So I to figure out how to incorporate U2, my nephews initials DJB and a pink and purple ribbon.
was this your first tat?
__________________
Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009
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07-07-2007, 04:33 AM
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#7
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Yep Laurie, This was my first tattoo. Never ever thought I'd get one. Funny how life changes us huh? Our oldest son came home with a tattoo 10 years ago and I about had a fit. NOW, he and his wife came over last night to see his mom & dad's tattoo's. Hahahahahahaha!
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-07-2007, 09:38 AM
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#8
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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so glad
you are moving on to other things and you have been well-treated for the cancer and can just be DONE! Just don't drift away from us-we need you. I love your posts, your pic, and find so much inspiration in your words. thank you for sharing good news and I'm so very happy for you!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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07-12-2007, 06:40 PM
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#9
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Senior Member
Join Date: May 2007
Location: DFW area (TX)
Posts: 431
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Way to Go!
Keep up the good news and the zest for life!
TRS
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07-13-2007, 05:59 AM
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#10
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 3,000
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Congrats
Love your spirit and always have, and the tattoo...how cute. Best of luck through this journey, continued prayers coming your way!!
Waiting For A Miracle..>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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