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06-14-2007, 11:31 AM
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#1
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Senior Member
Join Date: Oct 2005
Location: Alexandria, VA
Posts: 197
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Genentech sponsored her-2 event tonight in Baltimore, MD
Hi, all,
I know it is late notice but Genentech is sponsoring a Her-2 directed event this evening June 14 2007 at the Radisson Hotel at Cross keys, 5100 Falls Rd. Baltimore, MD. FREE registration starts at 6:30pm and the program begins at 7:00pm...all welcome. I am posting this here and on the events board.
This is apparently one of MANY similar events that they will be sponsoring throughout the summer--especially targeted to her-2 folks and breast cancer patients who may not know if they are her-2 positive or not.
If I find out the times and locations of the other summer events, I will post them if you don't have the list yet. I am planning to go as it is only about an hour from me.
Take care,
Gina
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06-14-2007, 12:07 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Oh, My Gosh...
is it really YOU!?!?!?! I just refered someone to you regarding magnesium and calcium? How ARE you? Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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06-14-2007, 01:04 PM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 161
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Hi Gina,
Good to hear from you, if even briefly...you are greatly missed by all.
Sue
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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06-14-2007, 03:46 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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Gina! I miss you, too--please stop by and give us an update on the Genetech event and on what's new with you.
__________________
Audrey
diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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06-14-2007, 04:08 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Wow! So great to hear from you Gina.
Barbara H.
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06-14-2007, 06:50 PM
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#6
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Senior Member
Join Date: May 2006
Location: California
Posts: 668
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Genentech meeting
Dear Gina: Do you know if there is a meeting planned for Southern California?
Please respnd. Thanks.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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06-15-2007, 01:21 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: Alexandria, VA
Posts: 197
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Notes from the Genentech 6/14 meeting in Baltimore
Hi, all,
Wow, I can't believe so many of you STILL remember me!!! I know it has been a while, but from 2005 through last week, I have been working like a maniac and simply could not squeeze in much internet time. Anyway, I finished two contracts recently and actually took an entire WEEK vacation (first one since 2004)...whew! I am new woman.
Anyway, you will ALL be thrilled to know that the her2support.org website information was PROMINENTLY displayed at the very top of one of the Genentech major presentation slides...that I (ahem) in that QUIET retiring way I have about me--not hee hee...was able to call EXTRA attention to, being sure to point out that our website was one of the three closely affiliated with Genentech. It was really neat as the last 3 orgs...carried a clear disclaimer that they were in NO WAY Affiliated with Genentech. So congrats to JOE and CHRISTINE for again always finding ways to get her2support.org into the mainstream of the folks who need the information the most.
The program was well-done--very professional and included many appropriate disclaimers such as HERCEPTIN is not for everyone and for those who do use it, potential side effects, like heart problems, could occur. There were nice light and healthy snacks and the Radisson facility was very elegant, sitting atop a great hill overlooking what looked to be a fabulous golf course. Registration began at 6:30pm and the program started about 10 minutes after 7:00pm--which was a good thing as UNBEARABLE DC to Baltimore traffic made me a bit late, but I got there in plenty of time to hear the Genentech presentation made by a full-time nurse practicioner who goes around the country training hospital/oncology staff and lay people alike. Delightful presenter who really knew her information. I missed her name, but I think I can look it up in my packet.
The Genentech presentation was followed by a "HER STORY" presentation made by Lynda, a 67-year old, her-2 positive ER- PR- breast cancer and LUPUS survivor. She was delightful and gave a very human side look at what it means to be a mother, a professional, a wife, a Christian, a human facing this illness. She worked into her talk a lot of solid wisdom about her determination to "LIVE HER LIFE" even while walking through what clearly was a dark interruption to her otherwise very busy, full, and bright routine. She was vibrant and full of energy with a compassion that overflowed and made folks want to reach out to her. Many talked with her at length following the presentation and I think all in attendence were greatly uplifted.
My only critique of the program (which I wrote down in the survey afterwards) was I wish there had been some sort of question and answer session for BOTH speakers and also, given the intimacy of the room, I think a brief round robin where we could have gone around the room to at least get the person's first name, Date of DX, type of DX or status, would have been very helpful as anyone with her-2 is always naturally curious to learn what others have experienced or to get good ideas for ways to improve treatment. Also, care givers were present and I think it would have been very useful to gain their unique bird's eye view as well.
No matter--overall RAVE reviews. I made several of the staff PROMISE to get me the list of the cities and locations where these events will be held all summer. I heard about one planned for DC in October and I am sure there will be something out California way.
I have started a new contract in Georgetown recently, but school is out and my kitchen remodel is about 98 per cent complete, so HOPEFULLY, I will have time to bother you all with my GINA regimens and crazy theories at some point not too far in the future.
I miss you all and look forward to connecting with more new folks. Thanks to Rhonda for sending Ruth and Terri my way. Always keep in mind that even though I do not check this site as frequently as I used to, anyone who wants is always welcome to contact me at my home website: GPOPP@COMCAST.net.
Best of wishes to each of you,
Gina |
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06-15-2007, 11:13 AM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 823
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I am so upset. In my mail THIS MORNING (June 15), there was card stating that this same presentation was held in Dallas, on Tuesday, June 12.
WAAAAAAAAAAAAAAAAAAAA, I can't believe this came three day's late. I would have had a friend drive me to Dallas, which is about 30 miles from me.
I feel so left out of something that would have been so wonderful to go to.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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06-15-2007, 07:06 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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i think they had something in Indy, and I got the card announcing it over a week past the meeting. I was really disappointed.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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06-15-2007, 07:41 PM
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#10
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Can anyone please mail me those cards? We are trying to find out why we did not receive advance notice. Genentech's PR firm had no knowledge of these events. We are trying to find out who is schedulling these.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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06-15-2007, 07:52 PM
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#11
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Senior Member
Join Date: Oct 2005
Posts: 823
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Joe my card say's on the return address:
HER story
P. O. BOX 756
Lightfoot, Va 23090
It say's this program is being provided Genetech BioOncology.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
Last edited by Yorkiegirl; 06-15-2007 at 07:53 PM..
Reason: forgot to put pOBox Number.
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06-15-2007, 07:55 PM
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#12
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Senior Member
Join Date: Oct 2005
Posts: 823
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Joe I will put my card in the mail to you tomorrow.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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06-15-2007, 08:34 PM
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#13
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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I threw it away once I'd seen it was already past. But it was from her story.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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