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Old 06-03-2007, 09:22 PM   #1
LAURIE
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Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
Question anyone ever use a lymphapress?

I am recieving a lymapress for lymphedema this week. Have anyone else used a pump before? I am not sure if my insurance will pay for it yet, but the company said I could use it for 60 days before paying for it anyways. I am hoping this will be the answer to control this fat hand of mine, and puffy upper arm. I have tried everything else. I have been able to keep it from getting worse but I am not satisfied with how it is now.
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Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 06-04-2007, 02:59 AM   #2
Frank&evelyn
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Join Date: Sep 2006
Location: Netherlands
Posts: 3
Dear Laurie,

My wife Evelyn, who's already IBC patient for 7 years now, had treatments with lymphapress.
She has a severe oedema of her right arm (upper arm 43cm in circumference), caused by dermal lymphatic invasion (DLI).
After treatments with just manual therapy and bandaging her arm all the time, she was treated with lymphapress.
It takes about an hour and she always finds it very relaxing. The pressure they use is not high, otherwise this would damage small lymphvessels.

In between the many chemocombinations with Herceptin her arm was reducing, but unfortunately after treatments it would increase again.
(This is mainly because of her rare and strange kind of cancer)
However, her grade of oedema is far worse than in "normal" cases.

Just take an MP3 player with you and don't worry about it.
Again, it's very relaxing. And I really do hope it will work for you.

Good luck,

Frank & Evelyn
The Netherlands
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Old 06-04-2007, 07:31 AM   #3
LAURIE
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Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
Sounds like you had to go to therapy for your lymphapress. Mine is being delviered to my home today. Hopefully this will encourage me to use it more ofter. (you knough just like the treadmill and exercise bike in the basement!!) Ha! Ha!Thank you for replying to my post!!!
__________________

Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

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Old 06-04-2007, 08:25 AM   #4
saleboat
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Join Date: Sep 2005
Location: NYC
Posts: 250
I've found lymphedemapeople.com a really helpful web-site. I bet if you search under 'lymphapress' you'll find lots of people with experience.

Good luck.

Jen
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dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
Tamox
livingcured.blogspot.com

"Keep your face to the sunshine and you cannot see the shadow." -- Helen Keller
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